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What is Ataxia?
Ataxia
Symptoms
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Fact Sheets
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Blog
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Living With Ataxia
Navigate Your Ataxia Journey
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Genetic Test Options
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Events
2022 Annual Ataxia Conference
Annual Ataxia Conference
Walk N Roll To Cure Ataxia
International Ataxia Awareness Day
Joint Mission Bataan
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Ataxia Research Grants
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Meetings
International Congress for Ataxia Research 2022
Ataxia Clinical Training
EL-PFDD Meeting for Polyglutamine Ataxias
Initiatives
NAF Drug Development Collaborative
CRC-SCA
Ataxia Global Initiative
CAGC Website
Pan American Hereditary Ataxia Network
Provider Resources
Connect Your Patient with an Ataxia Specialist
Evaluation and Management of Ataxic Disorders (PDF)
Menu
What is Ataxia?
Ataxia
Symptoms
Treatment
Genetics
Getting a Diagnosis
Fact Sheets
Educational Webinars
Blog
Find Ataxia Clinics & Specialists
Living With Ataxia
Navigate Your Ataxia Journey
Find Ataxia Care
Genetic Test Options
Join a Support Group Meeting
Participate in Research
Enroll in Patient Registry
Blog
Fact Sheets
Ataxia ID Card
Educational Webinars
Ask The Ataxia Expert
Become a Member
Member Stories
Advocacy
Ways to Give
Join Accelerate
Discover Resources
Local Support Groups
Marketplace
General Ataxia Resources
International And Other Ataxia Organizations
Community Links
Blog
COVID-19 Information for Ataxia Patients
Support Groups
Support Group Map
Meeting Calendar
Research
Participate in Research
Get Genetic Testing
Find Research Studies
Find Clinical Trials
Enroll in Patient Registry
Join Natural History Study
Enroll in Brain Donation Program
NAF Research Funding
About NAF Research
2022 Research
2021 Research
2020 Research
2019 Research
2018 Research
2017 Research
2016 Research
Get Involved
Ways to Give
Accelerate
Donate
Planned Giving
Become a Fundraiser
Start a Facebook Fundraiser
Shop with Amazon Smile
Events
2022 Annual Ataxia Conference
Annual Ataxia Conference
Walk N Roll To Cure Ataxia
International Ataxia Awareness Day
Joint Mission Bataan
Advocacy
Become an Advocate
Advocacy Events
Share Your Story
View Legislative Issues
Voice of the Patient Report
Support Groups
Become a Member
Support Group Map
Meeting Calendar
For Professionals
Ataxia Research Grants
Learn About NAF Grant Process
Research Grant Types
Past NAF Research Grants
Meetings
International Congress for Ataxia Research 2022
Ataxia Clinical Training
EL-PFDD Meeting for Polyglutamine Ataxias
Initiatives
NAF Drug Development Collaborative
CRC-SCA
Ataxia Global Initiative
CAGC Website
Pan American Hereditary Ataxia Network
Provider Resources
Connect Your Patient with an Ataxia Specialist
Evaluation and Management of Ataxic Disorders (PDF)
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Support Groups
About NAF
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as seen on
All general sessions were streamed LIVE on Facebook
GENERAL SESSIONS – DAY 1
Download Available Powerpoints - DAY 1
Trigriluzole: A Phase 2/3 Randomized Controlled Trial in Patients with Spinocerebellar Ataxia
–
Robert Berman, MD
Clinical vs. Basic Science Research
– Harry Orr, PhD and George (Chip) Wilmot, MD,
PhD
NAF Update
– Bill Sweeney, NAF President
Living with Ataxia
– Moderator: Kyle Bryant; Panelists: Jonas Cepkauskas, Cathy DeCrescenzo, and Linda Snider, MD
Barriers to Exercise
– Jennifer Millar, MS, PT and Jennifer Keller, MSPT
GENERAL SESSIONS – DAY 2
Download Available Powerpoints - DAY 2
FRDA and Other Childhood Ataxias
– David Lynch, MD, PhD
Genetic Testing – You Need to Get Tested: Here’s Why
– Jeremy Schmahmann, MD
Ataxia Investigators Meeting (AIM) Highlights
– Gülin Öz , PhD and Albert LaSpada, MD, PhD, FACMG
Management of Ataxia
– Moderator: John W. Day, MD, PhD; Panelists: Amanda Gallagher, MA, CCC-SLP, Jennifer Keller, MSPT, and Liana Rosenthal, MD
Home Safety Based Modifications
– Jessica Wilchinski, MA, OT R/L and Marlena Casey, OT R/L, CLT
FEATURED SPEAKERS
CONFERENCE INFORMATION
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