NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Join us for a tropical afternoon filled with island vibes, Hawaiian tunes, and lots of fun! 🌴
Highlights of the night:
Dress in your best Hawaiian attire – think grass skirts, floral shirts, and leis! 🌸
We’ll be providing prizes, leis, and bingo games!
This party is proudly sponsored by the National Ataxia Foundation.
RSVP required by contacting the event organizer.
We can’t wait to celebrate with you and create wonderful memories together!
Mahalo!
Contact Information
Kim Riter, Social Events and Communications Director
Email: cohataxia@gmail.com