Calendar of Events
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1 event,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
1 event,
Atlanta Walk N’ Roll to Cure Ataxia
Atlanta Walk N’ Roll to Cure Ataxia
hank you for your interest in the Atlanta Walk n’ Roll to Cure Ataxia. Participation in the event is FREE. To participate click on the “Become a fundraiser” to set up your personal fundraising page and a personal fundraising goal. Participants/fundraisers are encouraged to personalize their fundraising pages. Then share the link to your personal
1 event,
2 events,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Ataxia supplements/vitamins; celebrating October birthdays Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
VIRTUAL Just Us Ataxians Support Group Meeting
VIRTUAL Just Us Ataxians Support Group Meeting
EASTERN TIME Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is just for those WITH ataxia. Zoom information: Meeting ID: 861 8867 8320 Passcode: Ataxia For more information or meeting access, contact Donna Gorzela at donna.gorzela@gmail.com or Robert Dean at robert_dean00@yahoo.com
1 event,
Comedy Night Fundraiser for Ataxia
Comedy Night Fundraiser for Ataxia
Please join us for a fun and impactful event! All proceeds will go to the Hampton Roads Walk n’ Roll event on October 14th.
1 event,
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 3
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 3
EASTERN TIME Thrive Together on Thursdays Wellness Series Goal: Provide ataxia patients with education, information, and resources that will help individuals positively manage their condition and improve their overall quality of life 1:15 pm-2:00 pm Seated Tai chi exercise session with Jennifer Keller, PT, MS https://jhjhm.zoom.us/meeting/register/tJAsd-ivqTkuG9WpGnhfGKqwryQ5sE65yYp1 For more information, contact Melissa Egerton, JHU
3 events,
All About MSA-C
All About MSA-C
Do you or a loved one have Cerebellar type Multiple System Atrophy (MSA-C)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Presented by: Elizabeth Coon, MD Register Here!
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
VIRTUAL North Carolina Triangle Support Group Meeting
VIRTUAL North Carolina Triangle Support Group Meeting
EASTERN TIME North Carolina Triangle Ataxia Support Group Date and Time: Saturday October 7th at 12:30 PM Eastern time This meeting will be a social hour and planning meeting for the upcoming year. I would love to hear your ideas for the end of the year December meeting as well! Link: Join Zoom Meeting https://us06web.zoom.us/j/88988260132?pwd=VTc0R2VxQU5qNTFhUDFJbUU0TDcrQT09
VIRTUAL Arizona Ataxia Support Group Meeting
VIRTUAL Arizona Ataxia Support Group Meeting
MOUNTAIN TIME For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!
2 events,
VIRTUAL Cincinnati Ataxia Support Group Meeting
VIRTUAL Cincinnati Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/87233976346?pwd=alhaVHBTVW52M0o2ZVpHaDJGRWh6UT09 Meeting ID: 872 3397 6346 Passcode: XfD77w For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Sunny’s story (Nebraska Ataxia) (from Youtube) – a young mother’s journey with her diagnosis of ataxia; Overcoming Ataxia: How IVF PGD Empowered Jessica’s Journey – posted at NAF on 7/27/23 Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
2 events,
Ask the Ataxia Expert
Ask the Ataxia Expert
Dr. Perlman will join us to answer your questions about Ataxia. This is an informal discussion-style webinar without a set topic. You'll be able to ask any questions you have about Ataxia during this hour. Please do not submit questions in advance. Post your questions using the Q&A function as soon as you enter the
Ask the Ataxia Expert
Ask the Ataxia Expert
Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Please do not submit questions in advance. Post your questions
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
7 events,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
IN-PERSON Northern California Ataxia Support Group Meeting
IN-PERSON Northern California Ataxia Support Group Meeting
Please save the date: Saturday, Oct 14th for a Northern California Ataxia Support Group Meeting in Lafayette. We usually meet around lunch time. The exact time, address and speaker details will be sent out closer to the date in October. We hope to see you there! For more information, contact Dawn Ngo at dawniep@gmail.com
EPIC Game Day
EPIC Game Day
Join us for Epic Game Day! $20/per person entry fee will include food, free-play games, and tournaments (UNO, Ticket to Ride, Sushi Go, and Five Crowns). Visit: www.ataxia.org/Game for more information!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
IN-PERSON Cincinnati Ataxia Support Group Meeting
IN-PERSON Cincinnati Ataxia Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Getting to know each other in smaller groups (breakout rooms) Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
Research and Treatment Development for MSA-C
Research and Treatment Development for MSA-C
Do you or a loved one have Cerebellar type Multiple System Atrophy (MSA-C)? Our expert will teach us how it is studied and give an overview of the current state of research and drug development for the disease. Presented by: Shoji Tsuji, MD, PhD Register Here!
1 event,
VIRTUAL Canada Ataxia Support Group Meeting
VIRTUAL Canada Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
8 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Twin Cities Ataxia Support Group Meeting
IN-PERSON Twin Cities Ataxia Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
HYBRID Nebraska Ataxia Support Group Meeting
HYBRID Nebraska Ataxia Support Group Meeting
CENTRAL TIME Let’s Get Scientific Clinical Trials, Genetic workout, & what’s happening Dr. Lauren Moore, NAF NEW Location- University of Nebraska at Omaha's Community Engagement Center (UNO CEC) 6400 South University Drive Road North, Omaha, NE 68182 Room #201 Plan a little extra time to find the space, park and take the elevators to the
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
EASTERN TIME For meeting access information contact Michael Cammer at Phone #: 610-996-5814 | Email: michael.cammer62@hotmail.com Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
VIRTUAL African Americans With Ataxia Support Group Meeting
VIRTUAL African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us06web.zoom.us/j/82608986486?pwd=Ae9QsaKQtpXFfs30bb48DEMUZKZoHa.1 Meeting ID: 826 0898 6486 Passcode: 786034 For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84872580415?pwd=R09hRnNpVVNPeHhUa0tPYXZXVnJYQT09 Meeting ID: 848 7258 0415 Passcode: 429848 Guest Speaker: MaryAnn Peterson from NAF For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
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1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: PRIME Study with exercise tips on balance, stiffness and sore muscles (Chip Fauver’s write up on his participation in this study) Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248
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4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
VIRTUAL Houston Ataxia Support Group Meeting
VIRTUAL Houston Ataxia Support Group Meeting
CENTRAL TIME Meeting ID: 411-986-7191 Passcode: 5eukxB For more information, contact Doug Brunnert at dab424@yahoo.com
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1 event,
PrepRARE Webinar: Finding Ataxia Information Online
PrepRARE Webinar: Finding Ataxia Information Online
The amount of information on the internet can be overwhelming. It’s hard to know where to start. In this session, we will be going over tips and tricks for finding reliable information about Ataxia online. Attendees will learn about key features of reliable healthcare information websites and strategies for protecting your privacy online. We will