Clinical Care of Ataxia Patients
The goal of this study is to better understand the clinical practices of providers caring for patients with hereditary ataxias. This includes geographic estimates of patient prevalence and prescription habits.
Link to Enroll: https://umich.qualtrics.com/jfe/form/SV_3qsNTK5Kj3wf9KS
About the Study
Eligible Ataxia Types
SCAs 1,2,3,6,7,8,10,12,27B, FRDA, RFC1/CANVAS, FXTAS, AT, EA1/2
Type of Study
Survey
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
07/28/2024
Estimated Completion Date
12/31/2026
IRB Approval #
HUM00255285
Location(s)
University of Michigan
109 Zina Pitcher Place, BSRB 4007
Ann Arbor, MI
Contact Information
Sharan Srinivasan
sharans@med.umich.edu
734-615-8116
What does participation in the study entail?
Completion of a one-time survey. This survey is anonymous, asking only country of practice. No other identifying information is requested.
What are the potential benefits for participants?
The results of this study will inform the greater ataxia community about the international prevalence of various hereditary ataxias by country of clinical care. Further, analysis of prescribing habits will allow clinicians to learn from each other and potentially improve patient outcomes.
What are the potential risks for participants?
There is no active intervention being performed and therefore no risk to participants.
Is there financial compensation?
No.
Is there travel reimbursement?
No.
Who is eligible?
Any clinician caring for patients with ataxia is eligible to take this survey.
Additional Information or Resources
Link to Enroll: https://umich.qualtrics.com/jfe/form/SV_3qsNTK5Kj3wf9KS
View Other Research Opportunities
Caregiver Experiences and Mental Health Among Disabled Adults
This study will examine the relationship between caregiver experiences and mental health among adults with disabilities or chronic conditions who receive caregiver assistance with activities of daily living. Using a Read More…
The role of the cerebellum in speech production
This research aims to characterize the role of the cerebellum in speech motor control. This work will help us understand how the cerebellum works and may lead to the development Read More…
From Anticipation to Reality: An Analysis of the Impact of Genetic Testing Results for Movement Disorders on Individual’s Lifestyle Choices
From Anticipation to Reality: An Analysis of the Impact of Genetic Testing Results for Movement Disorders on Individual’s Lifestyle Choices Link to enroll: https://som.qualtrics.emory.edu/jfe/form/SV_0e7pAitcrL6jQJU Disclaimer: This research opportunity is not Read More…
