Remote research study to develop measurement technologies
The goal is to develop measurement technologies that can help improve clinical trials for ataxias.
About the Study
Eligible Ataxia Types
Spinocerebellar Ataxias and other Ataxias
Type of Study
Research Study
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
11/2020
Estimated Completion Date
N/A – Ongoing
IRB Approval #
2019P003458
Location(s)
Massachusetts General Hospital
Remote Study
Contact Information
Nicole Eklund
neklund@mgh.harvard.edu
Phone: 617-726-7909
What does participation in the study entail?
No in-person visits are necessary. Participants will be asked to wear a wrist and ankle device continuously for one week, complete a speech survey and a computer mouse task twice per week for 2 weeks, and complete quality of life surveys. Participants will be asked to complete similar study tasks every 6 months for up to 3 years.
What are the potential benefits for participants?
This study will help develop measurement tools to improve clinical trials in ataxias.
What are the potential risks for participants?
As with all studies conducted online, there is a potential for a security breach of collected data and confidentially, but we take any and all precautions to protect collected data.
Is there financial compensation?
Yes. $50-$100.
Is there travel reimbursement?
No
Who is eligible?
Adults who have been diagnosed with spinocerebellar ataxia or other types of ataxias, have a family history of ataxia, or healthy volunteers. You are eligible to participate even if you do not have any symptoms. We want to develop tools that can detect and measure the earliest signs of ataxia.
View Other Research Opportunities
Remote Assessment of Cognition, Affect, and Motor Function in Ataxias
This study aims to better understand how different brain and body functions (movement, speech, thinking skills, and mood) are affected in spinocerebellar ataxias, and how these functions change over the Read More…
Understanding the Spectrum of SCA1, SCA2, SCA3, SCA6 Through the Eyes of Patients and Caregivers
Biohaven Pharmaceuticals is now enrolling patients and spouses/parent/caregiver in a research study of patients and families affected by SCA. The study is regarding the burden of SCA types 1, 2, Read More…
The role of the cerebellum in movement and thought
Our research focuses on how people produce coordinated movement and coordinated thought, and how these abilities may be impacted by cerebellar degeneration. Link to Enroll: https://tinyurl.com/53ycmrcu About the Study Eligible Read More…
