Survey on the Feasibility of Telehealth Rehabilitation for Ataxia
There are two goals: 1) to survey adults with ataxia regarding their mobility and functional ability level and their openness to a telehealth or in-person rehabilitation intervention and 2) if interested in participating in such a trial, to collect their contact information.
Link to Enroll: redcap.chrc.udel.edu/redcap/surveys/?s=TJMJTKJKYWFE79X7
About the Study
Eligible Ataxia Types
All Types
Type of Study
Survey
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
08/14/2024
Estimated Completion Date
08/15/2025
IRB Approval #
IRBNet ID# 2214510
Location(s)
University of Delaware
Remote Participation
Contact Information
Susanne Morton
smmorton@udel.edu
302-831-4235
Ashley Fath
RNP-Lab@udel.edu
What does participation in the study entail?
Completion of a survey with questions about ataxia history, current mobility and function, completion of the PROM-Ataxia questionnaire, demographic information, and (if desired) contact information. Participants can skip any questions they like. If answering the entire survey, the expected time comittment is approximately 30 minutes.
What are the potential benefits and risks for participants?
No direct benefits, except that, if desired, participants can be placed on our contact list to see if they are eligible and interested in various cross-sectional and/or the clinical trials studies, either in person or conducted via video telehealth meetings.
Is there financial compensation?
No.
Is there travel reimbursement?
Not applicable.
Who is eligible?
All adults over 18 years with known or suspected cerebellar damage and ataxia and the ability to read and write in English.
Additional Information or Resources
Link to Enroll: redcap.chrc.udel.edu/redcap/surveys/?s=TJMJTKJKYWFE79X7
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