NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Topic: Exercises
Host: YouTube Video Elizabeth Foss OT
Zoom Information
Join at: zoom.us/join
Meeting ID: 2276674020
Password: ataxia
Contact Information
For more information, contact Susan Stiles at susanataxia@gmail.com or Helen Louise Hendershot at paulandhelen98@gmail.com
Facebook Group: Ataxia Resources and Discussion Group
