Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
April 9 – 11, 2026
The Annual Ataxia Conference (AAC) is where our community comes together—people living with Ataxia, their loved ones, and the experts working toward treatments and a cure. It’s a time to learn, share, and connect with others who understand the journey. Whether you join us in person or online, you’ll leave inspired, informed, and reminded that none of us face Ataxia alone.
📍 Rosen Centre Hotel
9840 International Drive
Orlando, FL 32819
Join us in-person or online for the 2026 Annual Ataxia Conference! In-person attendees can get the best rate by registering before February 2, 2026. Registration covers access to all conference sessions and activities listed in the schedule. Hotel accommodations are not included. Take advantage of our special group rate for attendees.
Financial assistance is available. If cost is a concern, we offer travel grants and virtual scholarships—learn more about how to apply.
No refunds of registration fees for cancellations after 3/20/2026.
On-site registration is available for $400 for non-industry attendees. Registration at the door is not recommended.
Awardees receive free event registration and reimbursement for travel costs up to $1000.
Awardees receive free event registration.
In person, virtual, and industry registration options.
Limited discounted group rate available on a first-come, first-served basis.
On-site registration will be available for $400.
Our conference sessions bring together leading experts, inspiring speakers, and community voices to share the latest in Ataxia research, care, and living well.
The program offers a dynamic mix of experiences—from educational sessions to smaller group discussions and interactive workshops—designed to meet a variety of interests and needs. Alongside the learning, you’ll also find plenty of opportunities for fun and connection through social gatherings, making the conference both informative and enjoyable.
Explore the full schedule below to see what’s planned and who will be presenting. Click on a session title to learn more about that session and it’s speaker(s).
All times noted are Eastern Time. Schedule is subject to change.
Stop here first and get your conference program, name badge, and welcome bag.
Thursday, April 9
11:00 AM-6:00 PM ET
Location: Registration Desk
In-Person Event Only
Interested in research opportunities, accessible equipment, activities, and resources? Visit the Ataxia Marketplace to find out more about those areas of interest and participate in other activities. Persons under the age of 12 must be accompanied by a parent or guardian who is age 18 or older.
Thursday, April 9
11:00 AM-5:00 PM ET
Location: Registration Desk
In-Person Event Only
You have registered to attend the AAC. Now what? If you are wondering where to begin? What the conference is all about? How to schedule your time? What information or sessions would be the most useful to you? Then this session is for you to network and meet others who have similar questions. This session is aimed at helping anyone who may be looking for advice on how to get the most out of the conference. You will leave feeling more familiar with conference topics, events and breakout sessions. You’ll be able to plan out a schedule and even build in some time to relax and have fun!
Thursday, April 9
5:00 PM-5:45 PM ET
Location: Grand Ballroom D/E
In-Person Event Only
Joel Sutherland
Dana Mauro
Presented by:
Joel Sutherland transitioned to the nonprofit sector after spending 28 years in sports marketing, including career stops with the Los Angeles Dodgers and Minnesota Twins. In 2011 he became the Executive Director for the Minnesota and Dakota Chapter for the Cystic Fibrosis Foundation. He joined NAF as Director of Development in 2016. While with NAF he has overseen the expansion of the Walk N’ Roll campaign and has initiated various other campaigns.
Dana Mauro is a curious, knowledgeable wife of someone with 2 rare diseases: Ataxia and Mitochondrial disease. Her mission is to share reputable Ataxia information. In 2014 she launched a video series on You Tube, Twitter and Facebook called ‘Did You Know Ataxia facts’ that reached 17 countries with 300 videos to date. She authored 4 PSA’s about Ataxia for NAF. She is the Leader of the Spouses and Partners Support Group and has many years of experience coordinating fundraising events in support of NAF.
Stop here first and get your conference program, name badge, and welcome bag.
Friday, April 10
7:45 AM-5:00 PM ET
Location: Registration Desk
In-Person Event Only
Join us for a continental breakfast to start your day with light fare and an opportunity to connect with fellow attendees before sessions begin.
Friday, April 10
7:45 AM-8:30 AM ET
Location: Grand Ballroom A/B/C
In-Person Event Only
Interested in research opportunities, accessible equipment, activities, and resources? Visit the Ataxia Marketplace to find out more about those areas of interest and participate in other activities. Persons under the age of 12 must be accompanied by a parent or guardian who is age 18 or older.
Friday, April 10
7:45 AM-5:00 PM ET
Location: Grand Ballroom Foyer
In-Person Event Only
Begin the day with important announcements, daily highlights, and inspiration to help you get the most out of the conference.
Friday, April 10
8:30 AM-9:00 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Andrew Rosen
Dana Mauro
Joel Sutherland
Presented by:
Andrew Rosen is the Chief Executive Officer of the National Ataxia Foundation. Since joining NAF, Andrew has focused his attention on updating the organization’s strategic focus to include partnering with pharmaceutical companies interested in developing treatments for Ataxia. He has also spent time traveling the country, meeting NAF members, donors, and other partner organizations to help spread the NAF message.
Joel Sutherland transitioned to the nonprofit sector after spending 28 years in sports marketing, including career stops with the Los Angeles Dodgers and Minnesota Twins. In 2011 he became the Executive Director for the Minnesota and Dakota Chapter for the Cystic Fibrosis Foundation. He joined NAF as Director of Development in 2016. While with NAF he has overseen the expansion of the Walk N’ Roll campaign and has initiated various other campaigns.
Dana Mauro is a curious, knowledgeable wife of someone with 2 rare diseases: Ataxia and Mitochondrial disease. Her mission is to share reputable Ataxia information. In 2014 she launched a video series on You Tube, Twitter and Facebook called ‘Did You Know Ataxia facts’ that reached 17 countries with 300 videos to date. She authored 4 PSA’s about Ataxia for NAF. She is the Leader of the Spouses and Partners Support Group and has many years of experience coordinating fundraising events in support of NAF.
Receiving an Ataxia diagnosis can feel overwhelming, and preparing for your first specialist appointment often brings many questions. This session will walk you through what to expect at a neurologist visit, including key topics to discuss and how to advocate for your needs. You’ll leave with practical tips and resources to help you feel confident and prepared for the next steps in your care.
Friday, April 10
9:00 AM-9:45 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Liana Rosenthal, MD, PhD is the Daniel B. and Florence E. Green Professor in Ataxia and an Associate Professor of Neurology, Director of the Johns Hopkins Ataxia Center, and Co-Director of the Lewy Body Dementia Association {LBDA) Center of Excellence at the Johns Hopkins School of Medicine in Baltimore, Maryland.
Birds of a Feather Sessions are small, interactive gatherings grouped by Ataxia type or other shared interests. Each sessions is facilitated by an Ataxia expert who will ensure a safe space to talk, ask questions, and learn from each other. Check out the schedule of Birds of a Feather session options below.
Friday, April 10
10:00 AM-12:00 PM ET
Location: Varies – See list for room assignment
In-Person Event Only
Building core strength can play an important role in improving balance, posture, and overall mobility for people living with Ataxia. In this interactive workshop, a trained professional will guide you through safe, adaptive exercises designed to strengthen your core. You’ll gain practical techniques you can continue at home to support everyday movement and stability.
Friday, April 10
10:30 AM-11:30 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Elizabeth Foss, OTR/L has been a practicing occupational therapist for 13 years and has a passion for serving those with Ataxia. She is the YouTube content creator for the channel “Little Steps, Big Gains” in which she provides free resources with educational videos and exercise programs.
Elizabeth is certified in LSVT BIG, Otaga, Tai-Chi, Functional Aging Specialist and is an Older Adult Exercise Consultant.
Take some time to eat and relax. No programming available at this time. It is a great time to check out the Exhibit Area.
Friday, April 10
12:00 PM-1:30 PM ET
Managing Ataxia often involves both medical treatment for symptoms and lifestyle choices. In this session, you’ll learn how medications and diet can work together to support your health. You’ll come away with practical guidance to discuss with your care team and apply in daily life.
Friday, April 10
1:30 PM-2:00 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
George “Chip” Wilmot, MD, PhD is associate Professor in the Movement Disorders division of the Department of Neurology at Emory University. Dr. Wilmot had early career experience in laboratory research working on disease mechanisms of the ataxia and on factors affecting axonal stability, but for the past 15 years has focused primarily on clinical research in Ataxia and on the clinical care of Ataxia patients.
Speech and swallowing challenges are common in people living with Ataxia and can affect both daily life and emotional well-being. This session will explain why these changes occur and highlight assistive technologies, strategies, and resources to help maintain safe eating, drinking, and effective communication. Attendees will gain practical tools and knowledge to better manage these symptoms and support quality of life.
Friday, April 10
2:00 PM-2:30 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Allison Hilger, PhD CCC-SLP is an Assistant Professor at the University of Colorado Boulder and Director of the Colorado Motor Speech Lab. She utilizes her clinical experience as an ASHA-certified speech language pathologist to investigate translational outcomes for evaluation and treatment in speech disorders resulting from neurological injury and disease. Dr. Hilger earned a Ph.D. from Northwestern University in 2020 and a clinical master’s degree from Purdue University in 2015. Currently, she lives in Boulder, Colorado and enjoys hiking and skiing with her family.
Take a 30-minute break to rest, recharge, and connect with fellow attendees before the next session.
Friday, April 10
2:30 PM-3:00 PM ET
Birds of a Feather Sessions are small, interactive gatherings grouped by Ataxia type or other shared interests. Each sessions is facilitated by an Ataxia expert who will ensure a safe space to talk, ask questions, and learn from each other. Check out the schedule of Birds of a Feather session options below.
Friday, April 10
3:00 PM-5:00 PM ET
Location: Varies – See list for room assignment
In-Person Event Only
Building core strength can play an important role in improving balance, posture, and overall mobility for people living with Ataxia. In this interactive workshop, a trained professional will guide you through safe, adaptive exercises designed to strengthen your core. You’ll gain practical techniques you can continue at home to support everyday movement and stability.
Friday, April 10
3:00 PM-3:30 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Elizabeth Foss, OTR/L has been a practicing occupational therapist for 13 years and has a passion for serving those with Ataxia. She is the YouTube content creator for the channel “Little Steps, Big Gains” in which she provides free resources with educational videos and exercise programs.
Elizabeth is certified in LSVT BIG, Otaga, Tai-Chi, Functional Aging Specialist and is an Older Adult Exercise Consultant.
Join us for light refreshments and the opportunity to meet other conference attendees! We will begin the reception by seating attendees according to region, so you can get to know others from your area. Many people make new friends at this event and want to stay in touch afterwards. A cash bar will be available for your convenience.
Friday, April 10
5:00 PM-6:30 PM ET
Location: Grand Ballroom A/B/C
In-Person Event Only
Stop here first and get your conference program, name badge, and welcome bag.
Saturday, April 11
7:45 AM-5:00 PM ET
Location: Registration Desk
In-Person Event Only
Join us for a continental breakfast to start your day with light fare and an opportunity to connect with fellow attendees before sessions begin.
Saturday, April 11
7:45 AM-8:30 AM ET
Location: Grand Ballroom A/B/C
In-Person Event Only
Interested in research opportunities, accessible equipment, activities, and resources? Visit the Ataxia Marketplace to find out more about those areas of interest and participate in other activities. Persons under the age of 12 must be accompanied by a parent or guardian who is age 18 or older.
Saturday, April 11
7:45 AM-4:30 PM ET
Location: Grand Ballroom Foyer
In-Person Event Only
Begin the day with important announcements, daily highlights, and inspiration to help you get the most out of the conference.
Saturday, April 11
8:30 AM-8:45 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Joel Sutherland
Dana Mauro
Presented by:
Joel Sutherland transitioned to the nonprofit sector after spending 28 years in sports marketing, including career stops with the Los Angeles Dodgers and Minnesota Twins. In 2011 he became the Executive Director for the Minnesota and Dakota Chapter for the Cystic Fibrosis Foundation. He joined NAF as Director of Development in 2016. While with NAF he has overseen the expansion of the Walk N’ Roll campaign and has initiated various other campaigns.
Dana Mauro is a curious, knowledgeable wife of someone with 2 rare diseases: Ataxia and Mitochondrial disease. Her mission is to share reputable Ataxia information. In 2014 she launched a video series on You Tube, Twitter and Facebook called ‘Did You Know Ataxia facts’ that reached 17 countries with 300 videos to date. She authored 4 PSA’s about Ataxia for NAF. She is the Leader of the Spouses and Partners Support Group and has many years of experience coordinating fundraising events in support of NAF.
This session will provide an overview of social services that may be helpful for individuals and families affected by Ataxia. Topics may include access to care, support programs, and resources to help navigate daily challenges.
Saturday, April 11
8:45 AM-9:15 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Ataxia can impact more than movement—it may also affect thinking, memory, and emotional well-being. In this session, an expert will discuss how cognition and mood are connected to Ataxia, what symptoms to watch for, and strategies that can help. Attendees will learn ways to recognize challenges early and support overall brain health and quality of life.
Saturday, April 11
9:15 AM-9:45 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Jeremy Schmahmann, MD, PhD, FAAN, FANA, FAN is Professor of Neurology at Harvard Medical School, and a Neurologist at the Massachusetts General Hospital where he is the Founding Director (1994) of the Ataxia Unit, Director of the Laboratory for Neuroanatomy and Cerebellar Neurobiology, and a member of the Cognitive Behavioral Neurology Unit. His research and clinical practice focuses on the neurology and basic science of the ataxias and other cerebellar disorders, and he has pioneered the role of the cerebellum in cognition and emotion.
Take a 30-minute break to rest, recharge, and connect with fellow attendees before the next session.
Saturday, April 11
9:45 AM-10:15 AM ET
Creating a safe and accessible home environment can make daily life easier and support independence for people living with Ataxia. This session will cover practical home modifications and adaptive strategies to improve activities of daily living (ADLs). You’ll gain ideas and resources to help maximize comfort, safety, and independence at home.
Saturday, April 11
10:15 AM-11:00 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Elizabeth Foss, OTR/L has been a practicing occupational therapist for 13 years and has a passion for serving those with Ataxia. She is the YouTube content creator for the channel “Little Steps, Big Gains” in which she provides free resources with educational videos and exercise programs.
Elizabeth is certified in LSVT BIG, Otaga, Tai-Chi, Functional Aging Specialist and is an Older Adult Exercise Consultant.
Rehabilitation and mobility tools can play an important role in maintaining independence and quality of life for people with Ataxia. In this session, experts will share strategies to improve daily function and review devices that can support safe movement. Attendees will learn practical approaches to enhance mobility and adapt to changing needs.
Saturday, April 11
11:00 AM-11:30 AM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
TBD
Take some time to eat and relax. No programming available at this time. It is a great time to check out the Exhibit Area.
Saturday, April 11
11:30 AM-1:00 PM ET
Hear directly from individuals and families living with Ataxia as they share personal stories, challenges, and strategies for navigating daily life. This panel will offer a range of perspectives to highlight the realities of the condition and the resilience of the community. Attendees will gain valuable insights, encouragement, and practical ideas for their own journeys.
Saturday, April 11
1:00 PM-1:45 PM
Location: Grand Ballroom A/B/C
Available on Livestream
Celeste Suart, PhD
Matthew Lafluer
Amy DeLeon
Troy Stewart
Moderated by:
Celeste Suart, PhD received her PhD at McMaster University in Ontario, Canada. Her laboratory research focuses on DNA repair in Spinocerebellar Ataxia Type 1, specifically looking at how ataxin-1 can help or hinder the repair process. Outside of the lab, she studies accessible teaching practices and graduate-level education. Celeste is also the Managing Editor of SCAsource, a publication which aims to make ataxia research news more accessible for patients and family members.
Featuring:
Amy DeLeon
Matthew Lafluer
Troy Stewart, an Ottawa-based chef with Gluten Ataxia. He started in kitchens as my first at 14 yrs old, although his career as a chef didn’t happen till later in life, it took off in Vancouver where he started his own catering and private chef business. Unfortunately, that suddenly changed with Ataxia. Now he teaches others with physical disabilities and able-bodied people how to cook.
Other panelists TBD
Genetic testing can provide important answers about the type of Ataxia a person has and what it means for their family. In this session, experts will explain the testing process, what results may reveal, and how to approach next steps. Attendees will gain a clearer understanding of the benefits, limitations, and considerations involved in genetic testing.
Saturday, April 11
1:45 PM-2:30 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Jin Yun Helen Chen, CGC
Take a 30-minute break to rest, recharge, and connect with fellow attendees before the next session.
Saturday, April 11
2:30 PM-3:00 PM ET
Stay up to date on the latest Ataxia research and scientific advancements. In this session, NAF’s Chief Scientific Officer will provide an overview of current studies, progress toward treatments, and what’s on the horizon. Attendees will gain insights into the research landscape and how it impacts the Ataxia community.
Saturday, April 11
3:00 PM-3:45 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
Lauren Moore, PhD began her career as a Scientist in industry for several years, working towards the development of gene silencing therapies for Hereditary Ataxias and other neurodegenerative diseases. In 2022, she became the first Chief Scientific Officer (CSO) of NAF. Dr. Moore was inspired to enter the field of Ataxia research following the diagnosis of Ataxia in her own family. She is passionate about advancing Ataxia research and the development of treatments and technologies to impact patients.
Leaders from the pharmaceutical industry will share updates on current Ataxia research and drug development, discuss challenges and opportunities, and answer questions from the community. This interactive panel offers a chance to hear directly from those driving progress toward new treatments.
Saturday, April 11
3:45 PM-4:15 PM
Location: Grand Ballroom A/B/C
Available on Livestream
Presented by:
TBD
Join us as we close the conference by celebrating outstanding contributions from researchers and community members through our annual awards. This session will highlight the achievements that move us closer to treatments and honor the dedication of those making a difference in the Ataxia community. We’ll also share final reflections and gratitude as we conclude this year’s event.
Saturday, April 11
4:15 PM-5:00 PM ET
Location:
Available on Livestream
Andrew Rosen
Dana Mauro
Presented by:
Andrew Rosen is the Chief Executive Officer of the National Ataxia Foundation. Since joining NAF, Andrew has focused his attention on updating the organization’s strategic focus to include partnering with pharmaceutical companies interested in developing treatments for Ataxia. He has also spent time traveling the country, meeting NAF members, donors, and other partner organizations to help spread the NAF message.
Dana Mauro is a curious, knowledgeable wife of someone with 2 rare diseases: Ataxia and Mitochondrial disease. Her mission is to share reputable Ataxia information. In 2014 she launched a video series on You Tube, Twitter and Facebook called ‘Did You Know Ataxia facts’ that reached 17 countries with 300 videos to date. She authored 4 PSA’s about Ataxia for NAF. She is the Leader of the Spouses and Partners Support Group and has many years of experience coordinating fundraising events in support of NAF.
Hear from our keynote speaker, who will share insights and inspiration to close out the conference. More details will be announced soon.
Saturday, April 11
7:00 PM-11:00 PM ET
Location: Grand Ballroom A/B/C
Available on Livestream
One of the conference favorites! Enjoy a delicious plated meal followed by a lively dance party where everyone is welcome on the dance floor—wheelchairs, walkers, and all. It’s the perfect way to celebrate together and close out the day with great food, music, and community.
Saturday, April 11
7:00 PM-11:00 PM ET
Location: Grand Ballroom A/B/C
In-Person Event Only
Birds of a Feather Sessions are small, informal gatherings where you can connect with others who share similar experiences. These sessions bring together people by Ataxia type or other shared interests, creating a comfortable space to talk, ask questions, and learn from each other. It’s a chance to make meaningful connections with people who truly understand your journey.
Check out the schedule of sessions below.
Please note: Pre-conference Virtual Birds of a Feather Sessions will take place before the conference and are open to all registered attendees. We encourage in-person attendees to attend these sessions as well.
Thursday, April 2, 2026 – 11:30 AM – 1:30 PM ET
Pre-conference Virtual Sessions
Virtual and In-Person Attendees
Thursday, April 2, 2026 – 2:30 PM – 4:30 PM ET
Pre-conference Virtual Sessions
Virtual and In-Person Attendees
Please note: Due to technology constraints, in-person Birds of a Feather sessions will not be live streamed.
Friday, April 10, 2026 – 10:00 AM – 12:00 PM ET
In-Person Attendees Only
Friday, April 10, 2026 – 3:00 PM – 5:00 PM ET
In-Person Attendees Only
Make the most of your conference experience by staying at our host hotel, The Rosen Centre Hotel, located at 9840 International Drive
Orlando, FL 32819. You’ll be just steps away from all conference activities, with easy access to nearby restaurants, attractions, and the local airport. We’ve arranged a special group rate for attendees—reserve your room early to secure the best availability. Reservations will be available on a first-come, first-served basis beginning December 3, 2025. Rooms will be available while inventory lasts until Monday, March 16, 2026.
Tip for a Smoother Trip: Traveling with a companion can make navigating a new city easier and more enjoyable—plus, it’s always great to have someone to share the experience with! NAF recommends traveling with a companion if you typically rely on assistance with daily tasks, mobility, or transferring to help ensure a safer and more comfortable experience. If you are able, consider arriving a day before the conference starts to allow for a rest period before everything gets started.
Detailed information about the hotel and Orlando area are available below. Select a tab to review the information.
The Rosen Centre requires that all reservations be secured by the reservations due date with a credit card. Five (5) days prior to your arrival, one night’s guestroom and tax authorization will be processed on your credit card. The Rosen Centre has a five (5) day individual guest room cancellation policy. If an individual guest cancels less than five (5) days prior to arrival, the credit card used to guarantee the reservation will be charged a one night’s guestroom and tax fee.
Non-ADA rooms must be booked directly through Rosen Centre. Starting on 12/03/2025, non-ADA room reservations can be made online or by phone.
To book online, a link will be provided here after 12/3/25.
To book by phone, call 1-800-204-7234 and ask for the National Ataxia Foundation group rate after 12/3/25.
Please note: Non-ADA rooms do not have grab bars in the bathroom.
ADA room reservations will be available on a first-come, first-serve basis. ADA rooms are limited and cannot be reserved through the hotel. They must be requested through NAF. ADA room reservations will be accepted beginning at 12 PM CST on December 3, 2025. Email your request to kari@ataxia.org or call 763-553-0093 and leave a voicemail with your name and contact information to be added to the waiting list for an ADA room. Calls and emails will be time-stamped and processed in the order they were received.
To see this hotel’s ADA rooms, view the videos:
For questions about ADA room availability, contact Kari Brooks, Community Services Coordinator at 763-553-0093 or kari@ataxia.org.
Guests at Rosen Centre can enjoy an Olympic-sized outdoor pool, a full-service health spa, and boutique shopping. Pointe Orlando is just 5 minutes away. Shopping, dining, and entertainment await at Pointe Orlando. This popular entertainment complex includes boutiques, food trucks, and a 4Dx movie theater. The Rosen Centre is located on International Drive. You can explore the International Drive Resort area on the I-Drive Trolley https://www.internationaldriveorlando.com/iride-trolley/.
Show your conference name badge for 10% discount on select restaurant outlets at the Rosen Centre including: Everglades, Café Gauguin, Harry’s Poolside Bar & Grill, 98Forty Tapas & Tequila, and Banshoo Sushi Bar. Not valid on alcoholic beverages or pre-packaged grocery items. Exclusive of any applicable taxes, service charges, and/or gratuities. Excludes pre-fixed menus & group dining and cannot be combined with any other offer, coupon, or discount. The restaurant’s availability may vary and are subject to change. Rosen Centre Dining Options: https://www.rosencentre.com/corporate/
Environmental Considerations in Orlando, FL include humidity and mold.
If you need ADA equipment you are encouraged to bring those items with you or make arrangements to rent equipment locally. NAF is unable to provide ADA equipment. Be sure to rent or request any needed equipment from The Rosen Centre or a local provider in advance to be accommodated based on availability. A list of providers can be found in the Travel Info tab.
If you are attending with a service dog, please review the Rosen Centre’s Dog Policy https://www.rosencentre.com/accommodations/dog-friendly-hotel/
Parking charges are as follows, plus tax (subject to change):
Self-Parking- $28 Valet Parking – $40
50% discount on self-parking for all overnight attendees booked under NAF’s group rate.
Parking charges are separate and distinct from the room rate and taxes.
To help you with planning, NAF encourages you to access websites that will inform you of your rights and responsibilities when traveling by air. Go to NAF’s website resources page at www.ataxia.org/general-references/ and select the “Accessible Travel” option. You will be directed to a list of links such as Transportation Security Administration and the U.S. Department of Transportation.
Passengers requiring any in-flight assistance for your arrival or departure flights should contact their airline before traveling. Airlines will generally work with passengers to try to meet their in-flight needs. Also, visit the TSA Cares website www.tsa.gov/travel/passenger-support for contact information to request screening assistance, scooter assistance, service animal assistance, and any other accessible services that you may need at the airports you utilize during your travels. For your safety and for the safety of other travelers please do not leave your baggage unattended at any airport you visit during your travels. Video: How To Navigate an Airport in a Wheelchair.
Orlando International Airport
Orlando, FL, 32827
Detailed information about services and facilities at the Orlando International Airport (MCO) to assist travelers with disabilities can be found at www.orlandoairports.net/getting-around-mco/accessibility/
The distance from the gates to baggage claim and ground transportation varies greatly depending on which airline you are arriving on – Incoming Jet Blue and International flights arriving in Terminal C are likely to be the greatest distance to baggage claim. The maps on the airport’s website can give you an idea about the distance to baggage claim and ground transportation for the airline you are utilizing. MCO recommends arriving 2-3 hours prior to your departure to have ample time to check bags, get through TSA security, and find your gate.
Many services such as skycaps, sighted guides, and wheelchairs are provided by the airlines. Please contact your airline to reserve a wheelchair.
TSA Cares
TSA Cares is a toll-free helpline for passengers with disabilities and medical conditions that provides assistance in preparing for the airport security process.
Contact:
Call 72 hours ahead: 1-855-787-2227
Weekdays 8am to 11pm ET
Weekends/holidays 9am to 8pm ET
ContactCenter@tsa.dhs.gov
Federal Relay: 711
MCO Sunflower Lanyard Program
The Sunflower Lanyard Scheme® was originally created to act as discreet identification that the wearer, or their companion, has a hidden disability and might require additional assistance.
Wearing a sunflower lanyard enables passengers to self-identify to staff that they have a hidden disability. It is a voluntary program, and passengers are not required to participate. Passengers may choose to disclose their disability on the card, but they do not have to. They may also have a contact name and phone number on the card, which would be helpful if they are lost or are separated from their party. Airport staff are trained to recognize the lanyards and to be understanding if additional help is needed. Lanyards are available in the information booths on the Departures Level, prior to the security checkpoint. Wearing a lanyard DOES NOT guarantee fast tracking through security or any preferential treatment. Passengers are still required to arrange special assistance with their airlines and TSA Cares.
MCO Ground Transportation
Lift Equipped Group Shuttles
To get information regarding accessible shuttle transportation please contact the shuttle companies directly that are found on the Orlando International Airport website www.orlandoairports.net/parking-transportation/.
Taxis
Accessible taxi services are available at all three terminals. Taxi pickup spots can be found at:
Terminal A – Ground Transportation Curb (Level 1) in spaces A22-A25
Terminal B – Ground Transportation Curb (Level 1) in spaces B30-B34
Terminal C – Arrivals Curb (Level 6)
Those in need of wheelchair accessible taxis can check out this resource: https://www.comfortride.info/wheelchair-taxi.html
Ride Share Services
Uber and Lyft do have an accessible ride option that can be selected when booking your ride. Accessible rides are limited so wait times for accessible rides tend to be longer. Ride share pickup spots can be found at:
Terminal A – Level 2
Terminal B – Level 2
Terminal C – Level 6
The following information can be used as a guide as you plan your stay in Orlando. The National Ataxia Foundation does not endorse products, services, or manufacturers. Those mentioned below are included for your information only. The NAF assumes no liability for the use or contents of any product or service mentioned.
Florida Van Rentals
866-682-7895
https://floridavanrentals.com/
Mobility Works
877-275-4915
https://www.mobilityworks.com/wheelchair-vans-for-rent/
K&M Mobility Scooter Rentals (Recommended by the Rosen Centre)
407-363-7388
https://www.km-rentals.com/
Scootarama
407-897-6839
http://www.scootarama.com/
ScooterBug Rentals
800-726-8284
http://www.scooterbug.com/
Walker Mobility Scooter Rentals
407-518-6000
http://www.walkermobility.com/
Orlando Medical Rentals
877-356-9943
https://www.orlandomedicalrentals.com/
Buena Vista Rentals
407-331-9147
https://www.buenavistascooters.com/
Scootaround Inc
(888)441-7575
http://scootaround.com/
CVS Pharmacy
5908 W Iro Bronson Memorial Hwy
407-390-9431
www.cvs.com
Walgreens
12650 International Dr. S
407-238-4677
www.walgreens.com
Family Services Department
Office of Disability Concerns/ADA
2100 E. Michigan Street, 2nd Floor
Orlando, FL 32806
Email: OfficeOnDisability@ocfl.net
Phone: (407) 836-6568
We want the Annual Ataxia Conference to be accessible to everyone in our community. A limited number of travel grants are available to help offset costs for in-person attendees, and virtual scholarships are available to cover the registration fee for online participants. These are available for individuals with Ataxia, both adults and children, who may need financial assistance. If cost is a barrier for you, we encourage you to review the options and apply.
Travel grants are available to help cover costs for those attending the conference in Orlando, FL. Preference is given to those who are attending AAC for the first time. Awardees will receive:
Application Deadline: 12/3/2025
Virtual scholarships are available to support individuals joining the conference online.
Application Deadline: 3/20/2026
For questions regarding travel grants and scholarships, contact support@ataxia.org.
Please review our conference policies for important information about privacy, code of conduct, and other guidelines that help ensure a safe and respectful experience for all attendees. Select a tab to review the information.
Your data privacy and security are important to us. When you register for this event, NAF will process your data in accordance with our legitimate interests for hosting an industry event and for being a community-based organization. Please review NAF’s privacy policy, including how to exercise your rights under GDPR.
NAF intends to take photographs and video of this event for us in NAF news and promotional material, in print, electronic, and other media, including the NAF website. By participating in the event, you grant NAF the right to use any image, photograph, voice, or likeness, without limitation, in its promotional materials and publicity efforts.
We value the participation of each member of the community and endeavor to deliver an enjoyable and fulfilling experience. Conference participants are expected to conduct themselves with integrity, courtesy, and respect for others and maintain the highest level of professionalism at all conference programs and events, whether officially sponsored by NAF or not. All attendees, speakers, organizers, volunteers, vendors, and staff at any NAF event are required to observe the following Code of Conduct:
NAF is dedicated to providing a harassment-free conference experience for everyone, regardless of gender, sexual orientation, disability, physical appearance, body size, race, or religion. We do not tolerate harassment of conference participants in any form. All communication should be appropriate for a professional audience including people of diverse backgrounds and cultures. Sexual language and imagery are not appropriate for the conference. Be kind to others. Do not insult or defame participants. Harassment in any form, such as sexist, racist, or exclusionary jokes are not condoned at NAF events. Participants violating these rules may be asked to the leave the conference at the sole discretion of NAF.
The purpose of Birds of a Feather sessions is to provide a safe space for patients and family to connect with each other and expert facilitators. We welcome approved clinical observers. To ensure that the limited time in these sessions is fulfilling this valuable purpose to attendees we ask that all attendees agree to this Code of Conduct.
As an Ataxia patient organization, our mission is to find treatments and cures for the Ataxias. We believe creating a collaborative research environment that promotes diversity, equity, and inclusion for all our stakeholders and partners is essential to achieving this mission. We are committed to equality of opportunity and insist that all those engaging in our community are treated with dignity and respect. We will ensure this at AAC by fostering an environment that embraces diversity and inclusion and celebrates the contributions of all.
Infectious disease outbreaks, such as COVID-19 and Monkey Pox, can be unexpected and evolving situations. We will monitor any health emergency situations closely. At present, we are planning and preparing for an in-person conference. We do have contingency plans that will allow a quick response to changing conditions. These include postponing the event or pivoting to a fully virtual conference. We recommend that attendees do not book non-refundable travel. In addition, health safety precautions may be implemented at the discretion of NAF. Examples of safety precautions are social distancing and requiring face masks. If safety precautions are implemented, you agree to abide by them while attending conference functions.
By registering, you agree that NAF may share your contact details, along with other personal data that you provide in the registration form with event sponsors, as listed in the Sponsors section of the event website for the purpose of post-event follow up communication. This consent is granted for one-off communication from each Sponsor. To opt-out, email your request to naf@ataxia.org.
We invite you to exhibit at the largest Ataxia gathering in the world, where the Ataxia community comes to learn, share, and meet with friends old and new. Come and be a part of our 2026 Annual Ataxia Conference!
Contact Rich McCutchen at rich@ataxia.org or 763-285-6359 for more information.
We’re looking for partners to support 2026 AAC and help us bring this impactful program to the Ataxia community! Thank you to our sponsors who have already committed to supporting this event!
Contact Rich McCutchen at rich@ataxia.org for more information.
If you have other questions about AAC, please contact NAF at naf@ataxia.org for more information or call us at 763-553-0020.
