NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
The Maryland Walk N’ Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event!
Start a Team or Donate: Click here.
10 am – 12:00 pm
Hi. I am Victoria. My husband, Kevin, and myself have twin girls with Ataxia. Because of this disease my four-year-old girls are both in walkers and need many therapies, including speech therapy, and specialty doctors to help support them to achieve daily tasks of living. Ataxia is a disease that affects balance and coordination. It worsens over time and requires individuals to work harder to maintain skills. Come join us for the chance to support those with Ataxia with your physical presence and/or monetary gift to support the National Ataxia Foundation (NAF) in accelerating the development of treatments and a cure, while working to improving the quality of life for those living with Ataxia.
Have questions or want to help? Great! We’d love to hear from you!
NAF Contact: Jon Wegman, Regional Development Manager
Email: jon@ataxia.org
Phone: 763-231-2747
