NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Event Information
Location: Lake Wheeler Park – Magnolia Pavilion
The Magnolia Pavilion is the pavilion that is located closest to the main building, bathrooms, parking lot, playground, main dock, and boat area.
This Park allows dogs but they will need to be on a leash. No smoking please. There is no kitchen. No alcohol please. And just a heads up…. The parking does fill up quickly as it a popular park.
Menu: Please bring your own brown bag lunch. You are more than welcome to bring things for others to share if you would like. Bottled water and snacks will be provided.
I am looking forward to seeing everyone again and meeting new friends!
This is a beautiful location and the pavilion will be reserved all day. Please feel free to bring family and friends!
Contact Information
Kaitlyn Briggs
Email: kebriggs@comcast.net
Facebook Group: www.facebook.com/groups/429227696088261/
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
