NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
PACIFIC TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Guest speaker: Dr. Odinachi Oguh, a Movement Disorders Neurologist specializing in Ataxia at the Lou Ruvo Center for Brain Health/Cleveland Clinic in Las Vegas, NV
Zoom Link: https://bit.ly/3sYlilo
Contact Information
For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net
or Kristy Anderson at Email: lasvegasataxia@gmail.com
or Don Fey at Email: feydw@aol.com
or Daniel Gavern at Email: dkgavern@gmail.com
Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
