NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). SIGN THE PETITION
Supercharge your independence Think you’ve hit the peak of your abilities? Think again. Abilities live events and online resources deliver game-changing technologies, products, services and education to help our dynamic disability community break barriers and push past limits. Learn More: www.abilities.com/houston
Rare Across America is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story. Learn More: everylifefoundation.org/rare-advocates/rare-across-america/