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NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA)
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Rare Across America

August 4 - August 15

Rare Across America is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story.

Learn More: everylifefoundation.org/rare-advocates/rare-across-america/

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Details

Start:
August 4
End:
August 15
Event Category:
Website:
https://everylifefoundation.org/rare-advocates/rare-across-america/

Venue

Virtual
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