Virtual
Calendar of Events
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3 events,
Ataxia Recourses and Discussion Support Group
Ataxia Recourses and Discussion Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Adaptive recreation Host: Group
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Adaptive Recreation Host: Group
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
1 event,
Coffee Chat for Parents of School-Aged Kids with Ataxia
Coffee Chat for Parents of School-Aged Kids with Ataxia
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
2 events,
Chair Yoga & Mobility for Ataxia
Chair Yoga & Mobility for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
Northwest Washington Yeitis Support Group
Northwest Washington Yeitis Support Group
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw
2 events,
PrepRARE: All About Pre-Symptomatic Ataxia
PrepRARE: All About Pre-Symptomatic Ataxia
CENTRAL TIME ZONE We use the term "pre-symptomatic" to describe someone who has the genetic mutation to develop Ataxia, but is not yet experiencing symptoms. In this webinar, we will be joined by a neurologist and a certified genetic counselor to discuss common questions about pre-symptomatic Ataxia. Topics will include genetic testing, insurance, lifestyle modifications,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: NAF Genetic Testing Host:
5 events,
All About Unknown Ataxia with Family History
All About Unknown Ataxia with Family History
CENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Western NY Support Group Meeting
Western NY Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
Parents of Kids with Ataxia Support Group
Parents of Kids with Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom (link below) https://us02web.zoom.us/j/82112138698?pwd=g7Pl5TBNi3Hn4Wa1oTKt69SizyC2cX.1
Canada Support Group Meeting
Canada Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
2 events,
Research and Treatment Development for Unknown Ataxia with Family History
Research and Treatment Development for Unknown Ataxia with Family History
CENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Ataxia Resources and Disscussion Support Group Meeting
Ataxia Resources and Disscussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: TBD Host: TBD
1 event,
Living with Loss: Navigating Grief in Chronic Illness
Living with Loss: Navigating Grief in Chronic Illness
CENTRAL TIME ZONE Living with a chronic illness means living with infinite loss. This can lead to persistent feelings of grief. How do we walk through such difficulty and still hold on to hope? This webinar will explore how grief impacts the lives of those living with a limiting diagnosis along with its impact on
4 events,
Johns Hopkins Thrive Together
Johns Hopkins Thrive Together
Thursday, July 24 @ 1:00 pm (ET) "Chronic Cough Management" Chronic coughing and throat clearing affects an estimated 10-20% of adults. We will focus on the common medical and behavioral causes and contributors to chronic refractory cough (CRC), chronic throat clearing, and related symptoms. This talk will include a broad overview of evaluation
Chronic Cough Management
Chronic Cough Management
Thrive Together on Thursdays Wellness Presentations Goal: To provide ataxia patients with education, information and resources that help individuals positively self manage their condition and optimize quality of life. On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, July 24 @ 1:00 pm (ET) "Chronic
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This group is for spouses
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
