Webinar
Calendar of Events
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Coffee Chat for Parents of School-Aged Kids with Ataxia
Coffee Chat for Parents of School-Aged Kids with Ataxia
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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Chair Yoga & Mobility for Ataxia
Chair Yoga & Mobility for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
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PrepRARE: All About Pre-Symptomatic Ataxia
PrepRARE: All About Pre-Symptomatic Ataxia
CENTRAL TIME ZONE We use the term "pre-symptomatic" to describe someone who has the genetic mutation to develop Ataxia, but is not yet experiencing symptoms. In this webinar, we will be joined by a neurologist and a certified genetic counselor to discuss common questions about pre-symptomatic Ataxia. Topics will include genetic testing, insurance, lifestyle modifications,
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All About Unknown Ataxia with Family History
All About Unknown Ataxia with Family History
CENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
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Research and Treatment Development for Unknown Ataxia with Family History
Research and Treatment Development for Unknown Ataxia with Family History
CENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
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Living with Loss: Navigating Grief in Chronic Illness
Living with Loss: Navigating Grief in Chronic Illness
CENTRAL TIME ZONE Living with a chronic illness means living with infinite loss. This can lead to persistent feelings of grief. How do we walk through such difficulty and still hold on to hope? This webinar will explore how grief impacts the lives of those living with a limiting diagnosis along with its impact on
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Chronic Cough Management
Chronic Cough Management
Thrive Together on Thursdays Wellness Presentations Goal: To provide ataxia patients with education, information and resources that help individuals positively self manage their condition and optimize quality of life. On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, July 24 @ 1:00 pm (ET) "Chronic
