Webinar
Calendar of Events
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PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
CENTRAL TIME ZONE Thinking about joining a clinical trial but unsure what it really involves? The Weill Cornell Medicine Department of Genetic Medicine team will take you behind the scenes and give you an inside look at the research participant experience, with a focus on their Friedreich’s Ataxia (FA) gene therapy trial. Their expert coordinator
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All About Acute Cerebellar Ataxia
All About Acute Cerebellar Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at Acute Cerebellar Ataxia, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Acute Cerebellar Ataxia is a form of Ataxia caused by a previous infection in the cerebellum
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What Does That Mean? A Crash Course in Ataxia Diagnosis Lingo
What Does That Mean? A Crash Course in Ataxia Diagnosis Lingo
CENTRAL TIME ZONE Have you ever had questions about the terms used to describe different types of ataxia? Are you confused about what kind of ataxia you have based on your diagnosis paperwork? Do you wonder about the difference between different kinds of ataxia? If yes, then this webinar is for you. This session will
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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Cooking with Troy
Cooking with Troy
CENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
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Ask the Ataxia Expert
Ask the Ataxia Expert
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H9csqjGUQ4SqEbuiL83gfw Please do not submit questions
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All About Gluten Ataxia
All About Gluten Ataxia
CENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of Gluten Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by
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All About SCAR20
All About SCAR20
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Autosomal Recessive Spinocerebellar Ataxia type 20 (SCAR20)*, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. *This webinar is about Autosomal
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Visual Symptoms & Treatments for Ataxia
Visual Symptoms & Treatments for Ataxia
CENTRAL TIME ZONE This webinar will discuss visual symptoms associated with Ataxia. This includes double vision and other symptoms associated with eye movement abnormalities, which occur in Cerebellar Ataxia of any cause, as well as some discussion of retinal and optic nerve disease, which may occur in some specific genetic causes of Ataxia. Register: Click here.
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Coffee Chat for Parents of School-Aged Kids with Ataxia
Coffee Chat for Parents of School-Aged Kids with Ataxia
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
