Webinar
Calendar of Events
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Science Showcase: Dr. Hellyer
Science Showcase: Dr. Hellyer
CENTRAL TIME Dr. Shane Hellyer will present the research, "Characterization of naturally occurring mGlu1 mutations in SCA44 and SCAR13." Science Showcase sessions explore a past NAF research grant awardee's funded study to gain scientific insights about their Ataxia research. Register for Webinar: Click here. Lay Summary: Spinocerebellar ataxias (SCAs) are a group of debilitating movement
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All About SCA5
All About SCA5
CENTRAL TIME Do you or a loved one have SCA5? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register: Click here.
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Care Partners: Support for Spouses and Partners
Care Partners: Support for Spouses and Partners
CENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey. Register: Click here. About the Care
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Research and Treatment Development for SCA5
Research and Treatment Development for SCA5
CENTRAL TIME Adam Avery, PhD will teach us how SCA5 is studied and give an overview of the current state of research and drug development for the disease. Register for Webinar: Click here.
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NAF Science Showcase: Dr. Maimuna Paul
NAF Science Showcase: Dr. Maimuna Paul
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Paul will present the research, "Molecular and cellular mechanisms in EBF3-related cerebellar ataxias and neurodevelopmental disorders." Register for Webinar: Click here. Research Lay Summary: The overall goal of this project is to identify the molecular