NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
The National Ataxia Foundation provides these downloadable Fact Sheets for free. Click the icon or title to download the fact sheet.
NAF offers monthly newsletters and educational webinars to our members. NAF membership includes the following:
Become a member for free: www.ataxia.org/JoinNAF
Ataxia support groups are a great source of information at the local level. They are also opportunities to network and learn from peers. Feel free to reach out directly to a support group leader in your area.
Ataxia webinars: www.ataxia.org/webinars
PrepRARE Clinical Trial Readiness Education: www.ataxia.org/PrepRARE
Email naf@ataxia.org or call 763-553-0020
Send mail to:
National Ataxia Foundation
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
