Ataxia Tips

Real advice from real people living with Ataxia.

Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference.

This series features real advice from real people in the Ataxia community—simple things they’ve done to make life a little easier. Follow us on social media for #AtaxiaTipTuesday – we’re we will feature a new tip each week!

Got a tip that’s helped you? Share it here!

Submit a Tip

Short and simple tips work best! 2-3 sentences is recommended. We welcome longer tips, but may need to edit for social media. We encourage you to share a photo of yourself along with your tip. If your tip involves a product or device, a photo of it is helpful (but not required).

Questions? Contact us at naf@ataxia.org.

Recent Tips

Check out some of the latest tips shared by the Ataxia community!

We update this page regularly, but the most up-to-date tips are shared each week on our social media channels. Be sure to follow us to stay inspired and see new ideas as they’re posted!

Julie Wesson

I use a bag with handles if I ever have to carry anything in from the car and I’m by myself.

Donna Roysdon

I use a clothespin instead of a twist-tie to close bread bags.

Karen W.

Carry a cellphone on you at all times in a zippered lanyard or crossbody; easy to reach and won’t fall out of reach if you fall; also big enough to hold ID, cards, etc.

Shawn Davis

Wearing water socks inside has been a game changer! It gives me the grip I need and is easy to put on and forget.

Mary Beth Mattison

My speech therapist recommended that I take a sip of water after every bite of food. My upper esophagus is moving too slowly so food sits there and is uncomfortable. But the water after each bites helps push down the food.

Elissa Fisher

To feel more stable while standing, place your feet in a wide base, with one foot slightly in front of the other and your front knee slightly bent. This helps reduce wobbling.

Stephen Trusedell

I do the laundry by putting it in a bag and tossing it downstairs. After washing and folding, I carry the bag on my back and use double handrails to climb stairs hands-free.

Pam Wetzels

Gel pills can be frozen—this makes them easier to swallow, even the larger ones. It’s a simple trick that really works.

Download a printable list of past Ataxia Tips.

Disclaimer: The views and opinions expressed in these tips are those of the individual and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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Stay Connected

Want more tips, stories, and updates from the Ataxia community? Follow us on social media! A new Ataxia Tip is shared every Tuesday, so don’t miss out—join the conversation, share your own experiences, and help spread awareness every time you like, comment, or share.