NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference.
This series features real advice from real people in the Ataxia community—simple things they’ve done to make life a little easier. Follow us on social media for #AtaxiaTipTuesday – we’re we will feature a new tip each week!
Got a tip that’s helped you? Share it here!
Short and simple tips work best! 2-3 sentences is recommended. We welcome longer tips, but may need to edit for social media. We encourage you to share a photo of yourself along with your tip. If your tip involves a product or device, a photo of it is helpful (but not required).
Questions? Contact us at naf@ataxia.org.
Check out some of the latest tips shared by the Ataxia community!
We update this page regularly, but the most up-to-date tips are shared each week on our social media channels. Be sure to follow us to stay inspired and see new ideas as they’re posted!
Download a printable list of past Ataxia Tips.
Disclaimer: The views and opinions expressed in these tips are those of the individual and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
Stay Connected
Want more tips, stories, and updates from the Ataxia community? Follow us on social media! A new Ataxia Tip is shared every Tuesday, so don’t miss out—join the conversation, share your own experiences, and help spread awareness every time you like, comment, or share.
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