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Registration for 2024 Annual Ataxia Conference is NOW OPEN! Early-bird discount available for a limited time.  LEARN MORE!

Virtual Exhibit Hall

An online Ataxia marketplace

Exhibitors

About the 2023 AAC Exhibit Hall

Thank you for joining us at the 2023 Annual Ataxia Conference! This gathering provides a unique opportunity to discover services, products, and companies that serve the Ataxia community. Click the logo above to learn more about that exhibitor, or scroll through them all below. Direct contact information is provided for each exhibitor. 

A special thanks to our top sponsors! 

About Us

Biohaven is a global clinical-stage biopharmaceutical company focused on the discovery, development, and commercialization of life-changing therapies for people with debilitating neurological and neuropsychiatric diseases, including rare disorders. The company is advancing a pipeline of therapies for diseases with little or no treatment options, leveraging its proven drug development capabilities and proprietary platforms, including Kv7 ion channel modulation for epilepsy and neuronal hyperexcitability; glutamate modulation for obsessive-compulsive disorder (OCD) and spinocerebellar ataxia (SCA) and myostatin inhibition for spinal muscular atrophy (SMA).

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About Us

Shining a light on Expressive Arts. We offer one­on­one workshops in acting, singing, and dancing to create positive experiences alongside people with ataxia.

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About Us

The CACNA1A Foundation, a 501(c)(3) nonprofit organization founded in March 2020, is a parent-led patient advocacy group working with a sense of urgency to find new therapeutics and a cure for the diseases caused by a mutation in the CACNA1A gene, which is expressed in the cerebellum and plays a vital role in the communication between neurons in the brain.

Variants in CACNA1A cause a number of neurological symptoms, including spinocerebellar ataxia type 6 (SCA6), episodic ataxia type 2 (EA2), congenital ataxia, cerebellar atrophy, epilepsy, hemiplegic migraine (SHM and FHM1), developmental delay, intellectual disability, autism, eye movement disorders, speech and language disorders and neuropsychiatric issues.

The CACNA1A Foundation is dedicated to finding a cure for our patients, raising awareness and educating families/caregivers/patients/physicians about CACNA1A-related diseases, and funding much-needed research towards a cure. We are building a preclinical toolbox that includes a natural history study, a library of biospecimens, animal models, and a disease concept model. We believe collaboration among all our stakeholders – the patients/families, clinicians, scientists and biopharma – is central to our lofty goal.

Our Video

About Us

The Cognition and Action Lab at the University of California, Berkeley, is recruiting participants with ataxia for an on-line research study. The lab, directed by Professor Rich Ivry, seeks to understand how ataxia impacts motor performance and aspects of cognition such as attention, memory, and language.

Our Research

The research involves behavioral experiments that are run on your home computer.  In the motor experiments, we test how well you can control the computer cursor using your mouse or your finger on your trackpad. In the cognitive experiments, we test your short- and long-term memory, as well as your problem-solving skills.  The experiments are not physically demanding and last between 30 minutes and an hour.  You can choose to participate in just one experiment or sign up for additional experiments.  This program is supported by the National Institute of Health.  You receive payment of $25/hour for your participation.

This research is NOT a clinical trial and will not impact your medical treatment. Rather, we ask more basic science questions that try to understand how the cerebellum works with the rest of the brain to produce coordinated movement and thought. We do expect that this work will, in the long run, prove beneficial to physicians as they develop novel interventions to assist individuals with ataxia.

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For more information on the studies, please click here: tinyurl.com/Ataxia-Study-Info

Website: http://ivrylab.berkeley.edu/

Email: ivry@.berkeley.edu

About Us

The Colorado Motor Speech Lab is recruiting adults with spinocerebellar ataxia (all subtypes) and Friedreich’s Ataxia to study speech and swallowing difficulties. To be eligible, you must be over 18 and have a formal diagnosis by a neurologist or a physician. Participation is compensated at $20/hour. Ongoing testing will take place at the Colorado Motor Speech Lab at the University of Colorado Boulder in Boulder, Colorado. Testing may also be offered at a hotel conference room near you (also at the Annual Ataxia Conference) or in your home depending on where you live. 

Contact Us

To request more information, please fill out this form: cuboulder.qualtrics.com/jfe/form/SV_bHkQb0WxtzPiwrI.  

Please contact Dr. Allison Hilger at Allison.hilger@colorado.edu with any questions.

Website: www.colorado.edu/lab/motor-speech/

Email: allison.hilger@colorado.edu

About Us

Day Undefined is a marketplace of everyday products for accessible living. All of the products on our website have been reviewed by someone with a physical disability. We know that nobody’s experience with these items is the same, and what works for one person might not be right for another. Our commitment is to share what we know is real – real insights, real experiences – to help you better decide what is right for you. 

We are thrilled to be partnering with the National Ataxia Foundation to help bring more product insights to the NAF community.

About us

Co-founders Liam Dougherty and Kate Leader are both closely connected to the Ataxia community. Liam has Friedreich’s ataxia and uses a wheelchair and many other adaptive products. He has personally felt the indignity, discomfort, and confusion with the process of buying the things that he hopes will make his life easier. Kate’s sister, Jen, has ataxia, and has also felt the frustrations of trying to find the right products for more independent living. Day Undefined’s review team members come from across the US and Canada and have diverse disability experiences. We aren’t medical professionals and don’t give medical advice: we share real experiences so that you can better decide what works for you. 

Our Video

About Us

Hi all…many of you are newly or recently diagnosed. I was diagnosed some 27 years ago. You will find that REAL info is scarce, and much of what you find is nonsense hogwash. ‘The Ataxia Boot Camp’….no need to reinvent the wheel. Learn from my experience in understandable language because you WILL need to understand and deal with what is unbelievable to most. This is a compilation of many things I picked up over the years. Attending 6 NAF conferences, leading the Chicago Ataxia Support Group, Events, Fundraisers, etc., means I have been around the block a few times, and have met, spoken to, and interacted with literally HUNDREDS of Ataxia patients of all kinds, races, and ages.

You can also get some of my Ataxia-wearness shirts which I print myself, and don’t farm anything out to a large company with no vested interest (I had a t-shirt printing business) and have been making these available for almost 15 years. Look around and explore. Hit the ‘BIO’ button. I had to learn the hard way, and can make your journey a little more manageable….

Our Video

About Us

Mobius Mobility manufactures the next generation iBOT® Personal Mobility Device (the “iBOT® PMD”). With advanced electronics, sensors, battery technology, and software, the world opens up to you in an iBOT®. Traverse sand, snow, mud, curbs, and inclines with terrain following 4-Wheel Mode. Family day at the beach or hiking trail with friends? You’re in. No curb cut? No problem. Move and interact with others at standing height in Balance Mode. Connect with people at eye level and reach that upper shelf. Use Stair Mode to climb up and down stairs, indoors or out. Climb independently or with the help of a trained assistant, depending on your ability. Use remote mode to load your iBOT® PMD into a van or SUV with fewer or even no modifications.

And enjoy the benefits and simplicity of a conventional power wheelchair using Standard Mode for indoor tasks and ADA compliant environments. Reach. Climb. Go. You can do all these things and more in the iBOT® PMD.

About Us

Lacerta Therapeutics, Inc. is focused on exploiting our proprietary capsid technology and scalable manufacturing platform to advance AAV-based therapies via three primary approaches: gene replacement, gene modulation and novel vectorization of antibodies.

Our Video

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About Us

The Massachusetts General Hospital Ataxia Center is widely recognized as a premier center for the evaluation and management of patients with hereditary and acquired disorders of the cerebellum. It is also one of the lead sites internationally in clinical trials of new treatments for Ataxia and Multiple Systems Atrophy. The MGH Ataxia Center is closely allied with Founding Director Dr. Jeremy Schmahmann’s Laboratory for Neuroanatomy and Cerebellar Neurobiology, which pioneered the role of the cerebellum in cognition and emotion. Members of the Schmahmann Lab will be at the Annual Ataxia Conference conducting clinical and cognitive research sponsored by NAF.

Contact Us

Jason MacMorejmacmore@mgh.harvard.edu

Miranda Mizemmize@mgh.harvard.edu

Lauren AdamsLauren_Adams@DFCI.HARVARD.EDU

About Us

PTC Therapeutics is a science-driven, global biopharmaceutical company focused on the discovery, development, and commercialization of clinically differentiated medicines that provide benefits to patients with rare disorders.  PTC’s mission is to provide access to best-in-class treatments for patients who have little to no treatment options and is focused on the development of new treatments for multiple therapeutic areas.

Our Video

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Website: ptcbio.com

Facebook: facebook.com/PTCTherapeutics/

Twitter: twitter.com/PTCBio

Instagram: instagram.com/ptctherapeutics/?hl=en

Contact:
Anne Bruns
Global Patient Engagement Liaison, Clinical
abruns@ptcbio.com

About Us

Our Video

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About the Book

“Vernon was twenty-one, handsome, kind, fun-loving and Christian, and he was stealing my heart.” Thus began a love story that would evolve over the next twenty-three years through the blessing of five children and the sadness of living with a tragic, hereditary disease. That disease would continue to impact our family for more than fifty years. This story is a personal one. It is a story of deep sorrow mingled with the joy that comes from family, love, commitment, and faith.

A heartbreaking story of love and loss in the struggle with the inherited disease, ataxia. This author bares her heart as she tells the story of losing her husband and two sons while striving, through the years to overcome this tragic disease. The writer’s tenacity and vulnerability invite the reader to enter the story and leave with a more compassionate heart.-Ramona Wade MA, LMFT

My Book

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About Us

Our mission is to educate, empower and inspire individuals to live their best lives!

Sacred Mountain Yoga was created with the intent of making yoga practices accessible and available for people with limited mobility, injuries and working through various health issues.

Our Approach 

We provide simple and accessible yoga practices to improve health, reduce suffering and empower individuals to improve the quality of their lives. Classes are taught with appropriate modifications and vary in level and intensity based on the
​participants’ needs .

Our Video

SPECIAL OFFER FOR YOU!

Members of the Ataxia community are invited to download a Chair Yoga Program for FREE!

Use the code: NAF2021

About Us

Wilderness Inquiry’s mission is to connect people of all ages, backgrounds, identities, and abilities through shared outdoor adventures so that all people can equitably experience the benefits of time spent in nature.

Through the medium of outdoor adventure travel, we inspire personal growth, enhanced awareness of the environment, and community integration. Our adventures encourage people to open themselves to new possibilities and opportunities.

Since 1978 we’ve directly served more than half a million individuals from all walks of life – diverse youth, individuals with differing abilities, and others who face barriers of use to public lands and waterways. Our programs such as Canoemobile, Gateway to Adventure, and Families Integrating Together help connect people to the outdoors and each other.

At Wilderness Inquiry, we believe that everyone belongs. We work to ensure this belief holds true in our workplace, in our community, and in the outdoors.

Our Video

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Website: www.wildernessinquiry.org/

Email: info@wildernessinquiry.org

Phone: 612-676-9400

About Us

Zoetic Workshops teaches you to quiet your inner voices of fear, shame, guilt and pain and connect with your true self, your source, and to create your ideal life journey. Live your life as Who You Really Are. Zoetic Workshops – Bringing the Spiritual into the Practical.

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