Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
Advocacy events bring the Ataxia community together to push for progress. Whether you’re meeting with lawmakers, attending educational sessions, or raising awareness in your local community, these events are a chance to make your voice heard. Join us or our advocacy partners to learn, connect, and take meaningful action for a better future for people living with Ataxia.
2025 United Against Ataxia Hill Day: September 17 – Website coming soon!
International Ataxia Awareness Day: September 25 – www.ataxia.org/international-ataxia-awareness-day/
Rare on the Road Leadership Tour – Stay tuned for next year’s dates – everylifefoundation.org/rare-on-the-road/
Rare Disease Day: Week of February 28th – rarediseases.org/rare-disease-day/
Abilities Expo – www.abilities.com/expos/
Rare Across America: August 5-16th – rareadvocates.org/voter-voice
Global Genes RARE Patient Advocacy Summit: September 25-28th – globalgenes.org/event/patient-summit/
NORD Rare Diseases Summit: October 20-22nd – rarediseases.org/summit-overview/
Undiagnosed Day: April 29th – rareundiagnosed.org/april-29th-is-undiagnosed-rare-disease-day/
