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Orlando, FL – April 1-3, 2016

A portion of the 2016 AAC Presentations will be transcribed in future issues of “Generations” and released on NAF’s YouTube Channel throughout the year. Currently, you can find presentations from the 2015 conference general sessions on NAF’s YouTube Channel.

Note: All presentations are in PowerPoint and PDF unless otherwise indicated.


NAF Past, Present, Future (24 MB) (PDF) (Video)
Michael Parent, Executive Director
National Ataxia Foundaton – Minneapolis, MN

Update on FRDA Research (3 MB) (PDF)
David Lynch, MD, PhD
Children’s Hospital of Philadelphia – (CHOP) Philadelphia, PA

Physical Therapy PDF Only… (5 MB)
Jennifer Keller, PT
Motion Analysis Lab, Kennedy Krieger Institute – Baltimore, MD

Disability Decisions and Applying for SSDI (5 MB) (PDFVideo)
Jonathan Rodis & Kathleen Kane, Esq.
Winthrop, MA

The Ataxia Rollercoaster: How to have a Smoother Ride with the Ups, Downs & Loop-the-Loops of Life (6 MB) (PDFVideo)
Ellen Sichel, BS
Custom Calm, LLS – Atlanta, GA


Stem Cells: Fact-Fiction-Future (4 MB) (PDF) (Video)
Henry Paulson, MD, PhD & Lauren Moore, MS
University of Michigan – Ann Arbor, MI

NAF Supported Research Funding Update (1 MB) (PDF)
Harry Orr, PhD
University of Minnesota – Minneapolis, MN

Detours Ahead: Life with Ataxia (2 MB) (PDFVideo)
Nygel Lenz, NAF Support Group Leader
Clearwater, FL

Genetics 101 & Whole Genome Sequencing (2 MB) (PDF)
Vikram Shakkottai, MBBS, PhD
University of Michigan – Ann Arbor, MI

Sporadic Ataxia and MSAc (7 MB) (PDFVideo)
Vikram Khurana, MBBS, PhD
Brigham and Women’s Hospital
Harvard Medical School – Boston, MA


Management of Ataxia: Soup to Nuts (2 MB) (PDFVideo)
Susan Perlman, MD
University of California – Los Angeles, CA

Update on SCA Research (3 MB) (PDF)
George “Chip” Wilmot, MD, PhD
Emory University – Atlanta, GA

Using an iPad for Aided Communication: Augmentative and Alternative Communication Options (PDF – 1 MB, Video)
Nancy Harrington, MA, CCC-SLP
Florida Alliance for Assistive Services and Technology
University of Central Florida – Orlando, FL

Ataxia Investigators Meeting: Worldwide Research Updates PDF Only… (5 MB)
Gülin Öz, PhD
University of Minnesota – Minneapolis, MN

What We Have Learned (1 MB) (PDF) (Video)
John Day, MD, PhD
Stanford University School of Medicine – Stanford, CA

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