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Orlando, FL – April 1-3, 2016

A portion of the 2016 AAC Presentations will be transcribed in future issues of “Generations” and released on NAF’s YouTube Channel throughout the year. Currently, you can find presentations from the 2015 conference general sessions on NAF’s YouTube Channel.

Note: All presentations are in PowerPoint and PDF unless otherwise indicated.


NAF Past, Present, Future (Power Point) (24 MB) (PDF) (Video)
Michael Parent, Executive Director
National Ataxia Foundaton – Minneapolis, MN

Update on FRDA Research (Power Point) (3 MB) (PDF)
David Lynch, MD, PhD
Children’s Hospital of Philadelphia – (CHOP) Philadelphia, PA

Physical Therapy PDF Only… (5 MB)
Jennifer Keller, PT
Motion Analysis Lab, Kennedy Krieger Institute – Baltimore, MD

Disability Decisions and Applying for SSDI (Power Point) (5 MB) (PDFVideo)
Jonathan Rodis & Kathleen Kane, Esq.
Winthrop, MA

The Ataxia Rollercoaster: How to have a Smoother Ride with the Ups, Downs & Loop-the-Loops of Life (Power Point) (6 MB) (PDFVideo)
Ellen Sichel, BS
Custom Calm, LLS – Atlanta, GA


Stem Cells: Fact-Fiction-Future (Power Point) (4 MB) (PDF) (Video)
Henry Paulson, MD, PhD & Lauren Moore, MS
University of Michigan – Ann Arbor, MI

NAF Supported Research Funding Update (Power Point) (1 MB) (PDF)
Harry Orr, PhD
University of Minnesota – Minneapolis, MN

Detours Ahead: Life with Ataxia (Power Point) (2 MB) (PDFVideo)
Nygel Lenz, NAF Support Group Leader
Clearwater, FL

Genetics 101 & Whole Genome Sequencing (Power Point) (2 MB) (PDF)
Vikram Shakkottai, MBBS, PhD
University of Michigan – Ann Arbor, MI

Sporadic Ataxia and MSAc (Power Point) (7 MB) (PDFVideo)
Vikram Khurana, MBBS, PhD
Brigham and Women’s Hospital
Harvard Medical School – Boston, MA


Management of Ataxia: Soup to Nuts (Power Point) (2 MB) (PDFVideo)
Susan Perlman, MD
University of California – Los Angeles, CA

Update on SCA Research (Power Point) (3 MB) (PDF)
George “Chip” Wilmot, MD, PhD
Emory University – Atlanta, GA

Using an iPad for Aided Communication: Augmentative and Alternative Communication Options (PDF – 1 MB, Video)
Nancy Harrington, MA, CCC-SLP
Florida Alliance for Assistive Services and Technology
University of Central Florida – Orlando, FL

Ataxia Investigators Meeting: Worldwide Research Updates PDF Only… (5 MB)
Gülin Öz, PhD
University of Minnesota – Minneapolis, MN

What We Have Learned (Power Point) (1 MB) (PDF) (Video)
John Day, MD, PhD
Stanford University School of Medicine – Stanford, CA

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