NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is just for those WITH ataxia.
Zoom Link: https://us06web.zoom.us/j/81390927366?pwd=p8fmC5y5yzfMjFbNf8pZ98QbvbINhF.1
Contact Information
Cindy Michul
E-mail: michlecynt@gmail.com
Jeanne Harrington
E-mail: jpharri39@gmail.com
Facebook Group: Just Us Ataxians