NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Awareness Walk and Picnic. Join us for a walk and picnic. Bring family and friends as we walk to raise awareness about ataxia. Following a short walk, we will have a picnic lunch and enjoy each other’s company. Time: 10am to 12noon Location TBD.
Those with Ataxia and their caregivers often feel isolated. To counter that, Ataxia Connection has social events on the third Saturday during months the support group does not meet. Although all events are planned and scheduled in advance, they may be subject to change. RSVPs are required for attendance. All event details can be found on our website at AtaxiaConnection.org.
Contact Us – info@ataxiaconnection.org or 402-979-6331 (voice or text). RSVP no later than Jun 11th.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
