NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Presenter: Our presenter will be Jackie Bentlage-Brown, MSPT from Penn State Health she will present “Winter Workouts from Home, Making Do With What Yo Have”.
Location: The meeting will be held at the Penn State Hershey Medical Center’s 30 Hope Drive location. The meeting will be from 11 am to 1 pm.
If you are planning on attending the Annual Ataxia Conference at the end of March in Las Vegas, the early registration is January 24th.
Contact Information
For information contact Michael Cammer at Phone #: 610-996-5814 | Email: michael.cammer62@hotmail.com
Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
