NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
“Navigating Ataxia: Empowering Treatment Strategies for Patients and Care Partners”
Meeting Information
Zoom Link: https://jhjhm.zoom.us/meeting/register/tJErduGqpjguEtUx-eSj8W_9nFlW4M0M89rX
Contact Information
For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu