NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Event Information
On Saturday July 13th from 10:00-1:30 Susan Harris is arranging a potluck picnic for family and friends of those with Ataxia. It will be held at the Freedom Park at 5535 Centerville Rd., Williamsburg, VA. Details: Potluck. Bring your family and enjoy a couple of hours at the botanical gardens, the many walking trails or the neighboring go ape course!
Please RSVP to Susan Harris at susanharrisvt@gmail.com or 757-435-0290
Contact Information
For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
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