NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Community Picnic – Saturday, June 14th: 11:00a – 3:00pm
Camp Patterson
11405 Silver Lake Road
Everett, WA 98208
The NW Rare Disease Coalition is hosting the Rare Dsease/Medically Complex/Special Needs Picnic. This will be a fun day for patients and their families. All are welcome!
RSVP HERE: https://secure.everyaction.com/EWTswsIWPk-CBKTXEA0TpQ2?emci=dbdfed63-4815-f011-8b3d-0022482a9fb7&emdi=0210d75e-6315-f011-8b3d-0022482a9fb7&ceid=10089984
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