NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). SIGN THE PETITION
Goal: To provide ataxia patients with a sense of community, education, information and resources that will help individuals positively self-manage their condition and optimize quality of life
This is a fun virtual game activity that is meant to build community with one another, promote cognitive functioning skills and most of all to have fun!!!
Presenter Bios:
Melissa Egerton, MS, is the health educator for the Johns Hopkins Ataxia Center. Melissa supports patients and families living with ataxia by proving education, resources and information that promote and foster overall health, well-being and improved quality of life.