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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

  • FDA Rare Disease Day 2026

    Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF.   This is

  • Rare Disease Week on Capitol Hill

    Capitol Hill Washington, DC, DC, United States

    The Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand

  • Rare Disease Day at NIH

    Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF.   Rare Disease

  • All about SCA17

    Zoom Webinar

    CENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of All About SCA 17, the typical diagnostic journey for those affected, what

  • Western Carolina Support Group Meeting

    EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led

  • Rare Disease Day

    Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF.   Rare Disease

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