Events
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South Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join us for our upcoming support
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Central Ohio Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Old Worthington Library 820 High
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FDA Rare Disease Day 2026
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. This is a virtual event to connect patients with the FDA. There will be panels discussing topics related to patient-focused work being done at FDA and opportunities
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Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Zoom Link: Invite Link https://us02web.zoom.us/j/88527510609?pwd=uHkFCUenBHVh4GzKi829Hh2hdt2BIR.1 meeting I.D.:
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Rare Disease Week on Capitol Hill
Capitol Hill Washington, DC, DC, United StatesThe Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand the power of advocacy and the impact we can make when we raise our voices together. Learn more: https://everylifefoundation.org/rare-advocates/rare-disease-week/
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Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Social Talk
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Let’s Move Together – Free Exercise Program
Zoom WebinarCENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
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Treasure Coast Support Group Booth
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Lisa is setting up a
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Rare Disease Day at NIH
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Day at NIH will be held at NIH Main Campus (Natcher Conference Center) on Friday, Feb. 27, 2026, from 9 a.m. to 5 p.m. EST.
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All About SCA17
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of All About SCA 17, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia
