Calendar of Events
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Ataxia Awareness Zoom Information
FREE
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2 events,
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CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for
FREE
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1 event,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
FREE
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0 events,
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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3 events,
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EASTERN TIME ZONE The Jacksonville 5K Run/Walk will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Register to Walk/Run: runsignup.com/Race/FL/Jacksonville/OntheMovetoCureAtaxia Donate: Click here. Event Information I've been involved in
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
FREE
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MOUNTAIN TIME ZONE This Denver Comedy Show will bring together friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event with lots of laughs! Featuring Zac Mass and opener Ed Bell. Buy Tickets or
$100
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0 events,
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Social Media Tips, Celebrate
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/81731073486?pwd=4NxEJ6JXvuvRgt06Ga7J3aLhyukTB3.1 Meeting ID: |
1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact
FREE
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1 event,
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CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_ArZZ-DjtTQOrAbEOtr2cPA Please do not submit questions
FREE
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Link: https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting ID:
FREE
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CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spastic Paraplegia Type 7, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Gerald Pfeffer, MD, PhD
FREE
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4 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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5 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
FREE
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: zoom.us/join ID# 868
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
FREE
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PACIFIC TIME ZONE This Alameda Comedy Show will bring together friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event with lots of laughs! Some catering provided for the price of the ticket, cash
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/86961200049?pwd=y1w0XvWXIBtxb11dWPqVzNf03ebEpP.1 Meeting ID:
FREE
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1 event,
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join Zoom Meeting: https://bit.ly/3sYlilo Dial
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Zeen Mobility Device Zoom
FREE
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0 events,
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4 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
FREE
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third
FREE
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet on the third
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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10 events,
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EASTERN TIME ZONE The Central Ohio Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Start a Team or Donate: Click here. Event Information The Central Ohio
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Safe & Healthy Exercise: Madonna
FREE
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our Savior's Lutheran Church, main
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Penn State Hershey Medical Center's
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Meeting Link: https://us06web.zoom.us/j/84212772091?pwd=ztDgiiQNaCEy0JSe5RaNJv0XMDTEUe.1 Meeting
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join us for a fun-filled
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EASTERN TIME ZONE This "One Night Treatment for Ataxia" Comedy Show will bring together friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event with lots of laughs! There will be great gift baskets
$100
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0 events,
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Clinical trials experiences Speaker:
FREE
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0 events,
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0 events,
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom Contact Information For
FREE
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3 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is a support-only meeting.
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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3 events,
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CENTRAL TIME ZONE The Milwaukee Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Start a Team or Donate: www.ataxia.org/WalkMilwaukee Event Information Starting a Walk N'
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information: Carol Kutik The Lakeshore Foundation
FREE
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MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Contact organizer for Zoom Link.
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: (https://us05web.zoom.us/j/83427918475?pwd=gQynhyeqPDH2oTQltOhkQtGZXvStaT.1&fbclid=IwZXh0bgNhZW0CMTAAAR1LL_c0vIWfKM8senMxmoLbfhp4gbuCDbjuwByC5P-ZvewNgz5iknlmBI0_aem_5gpX6XAayIHOqMtLNjyQoQ) Meeting ID:
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Any Topic Linda Allen,
FREE
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0 events,
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1 event,
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CENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of X-Linked Cerebellar Ataxia (XLCA), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into these diseases. XLCA includes several different conditions, such as X-linked
FREE
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1 event,
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EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862 9733 1619
FREE
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4 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
FREE
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CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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1 event,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
FREE
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0 events,
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