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Advocacy

Amplifying the voice of the Ataxia community

ADVOCACY PARTNERS

Advocating for those affected by Ataxia is an important part of our mission at NAF. We are providing community members with more opportunities to get involved. Advocacy activities will expand our partnerships with other organizations and policy makers to help make a difference for people affected by Ataxia. Involvement in advocacy gives us a way to get your stories to policy makers and pharmaceutical companies to grow awareness, accelerate drug development, and ensure access to care and treatment services

United Against Ataxia Hill Day

5th Annual United Against Ataxia Hill Day

Wednesday, September 20, 2023
Virtual Event – Register Now

We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities. Representatives from NAF and FARA will schedule meetings with Congressional members to discuss issues important to the Ataxia community.

Visit www.ataxia.org/2023hillday to learn more!

Become an Ataxia Advocate

Join Our Advocacy Email List

Want to stay in-the-know about advocacy issues? We send a quarterly advocacy newsletter and periodic emails to those on our advocacy email list about current legislative issues and things you can do to get involved. To join, become a member of NAF or update your membership information at www.ataxia.org/JoinNAF. Make sure to select “Advocacy” in the Member Interests section. 

Past Advocacy Newsletters

Check out our previous Advocacy newsletters. 

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