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The decision to share, or not share, your genetic test results with loved ones is your personal choice. When, with whom, and how to share your results is completely up to you. It is normal to feel worried. The five tips below will help make the process of telling loved ones as easy as possible:
Before rushing to inform friends and family, take some time to process this new information. Discuss your emotions with a genetic counselor or therapist, prioritizing your own emotional well-being before addressing others’ concerns.
Identify a trusted individual in your life who understands the genetic diagnosis and its implications for family members. This person will assist you when you are faced with questions during the disclosure process.
With the help of your main support person, create a plan for how and when you want to tell loved ones.
Before initiating conversations with your loved ones, review the genetic information you’ve received and reach out to your genetic counselor if you have any uncertainties. While you don’t need to be an expert, it’s essential to have a clear message. Consider jotting down notes to help you remember the key points you want to convey. Make sure to have a copy of the test results handy, especially if they indicate a positive result.
Anticipate the various ways people may react to the news. Some family members might respond with anger or sadness, while others may feel relieved and empowered by the information you’ve shared. It’s important to recognize that a wide range of emotional responses is normal.
Remember, your genetic counselor is a valuable resource available to support you throughout this process. Whether you need assistance in practicing what you’ll say, help in drafting a family letter, or want their presence during the disclosure, don’t hesitate to reach out to them.
Wishing you the best of luck as you navigate this journey.
Written by Michelle Rochman, MS CGC
Edited by Celeste Suart, PhD
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