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NAF's First Virtual Conference

An international gathering

More than 800 joined us online for the largest Ataxia community gathering of 2021

March 10-13, 2021


View the sessions presented at the 2021 Annual Ataxia Conference below.

2021 Annual Ataxia Conference General Sessions

We were excited to host the 2021 conference 100% online, broadening the event’s reach and making it accessible to our global community. No masks were required since everyone joined us from the comfort of their own home

We hope you will enjoy the recordings of the sessions presented at 2021 AAC! Check back frequently. We will add two new sessions each month. 

Welcome Reception

Awards Ceremony

AAC Newcomers Session

Exhibitor Showcase

Ataxia Drug Treatment Targets and Pipeline

Unraveling Complex Ataxia Cases Through Whole Genome Sequencing

Newly Diagnosed with Ataxia

Navigating the Diagnostic Journey

Unraveling Complex Ataxia Cases Through Whole Genome Sequencing

Living and Coping with Ataxia

Research – the Key to Unmasking Ataxia

Gene Therapies for Ataxia 101

Ask a Social Worker – Insurance, Coverage and Navigating Care

New Developments in Cognitive Neuroscience of the Cerebellum

Sessions

Below are the topics that were covered in general or breakout sessions.

Agenda At-a-Glance


     WEDNESDAY, MARCH 10
     12pm-4pm CST

Welcome & Orientation

AAC Newcomers Session

Newly Diagnosed Session

General Session

Networking Break

Exhibits & Networking

Welcome Reception

     
     THURSDAY, MARCH 11
     12pm-4pm CST

Opening Keynote

General Sessions

Networking Break

Exhibitor Spotlight Session

Breakout Sessions

Exhibit Hall Networking

     
     FRIDAY, MARCH 12
     12pm-4pm CST

General Sessions

Networking Break

Breakout Sessions

Exhibitor Spotlight Session

Exhibit Hall Networking

     
     SATURDAY, MARCH 13
     12pm-5:30pm CST

Birds of a Feather Sessions

Exhibit Hall Networking

Awards Ceremony & Dance Party

Speakers

NAF invites world-leading Ataxia researchers and physicians to present at AAC. The 2021 Annual Ataxia Conference keynote speaker will be Dr. Susan Perlman, MD. Other speakers to be announced. 

Susan Perlman, MD

Susan Perlman, MD

KEYNOTE SPEAKER
Neurologist
UCLA Neurological Services

Kristin Barañano, MD

Kristin Barañano, MD

Pediatric Neurologist
Kennedy Krieger Institute

Matthew Bower, MS, LGC

Matthew Bower, MS, LGC

Certified Genetic Counselor
University of Minnesota

Kyle Bryant

Kyle Bryant

Ride Ataxia Founder and Director
FARA

Mike DeRosa

Mike DeRosa

Ataxia Support Group Leader
National Ataxia Foundation

Mark Desa

Mark Desa

Ataxia Support Group Leader
National Ataxia Foundation

Letitia Diggs

Letitia Diggs

Ataxia Support Group Leader
National Ataxia Foundation

Maneesha Finkle, LMSW

Maneesha Finkle, LMSW

Clinical Social Worker
University of Michigan Ataxia Center

Sue Hagen

Sue Hagen

Research Services Director
National Ataxia Foundation

Carli Hanson

Carli Hanson

Community Member

Previn Khemani, MD, FAAN

Previn Khemani, MD, FAAN

Neurologist
Swedish Neuroscience Institute

David Lynch, MD, PhD

David Lynch, MD, PhD

Pediatric Neurologist
University of Pennsylvania

Natalie Marnica

Natalie Marnica

Certified Yoga Therapist

Mauro

John and Dana Mauro

Ataxia Support Group Leaders
National Ataxia Foundation

Chuck and Ondie Mitchell

Chuck and Ondie Mitchell

Community Members

Courtney Ng

Courtney Ng

Community Member

Kelsey Poor

Kelsey Poor

Public Relations Manager
Novaspace/Spacefest

Andrew Rosen

Andrew Rosen

Executive Director
National Ataxia Foundation

Kelly Rutledge

Kelly Rutledge

Community Member

Jeremy Schmahmann, MD, FAAN, FANA, FANPA

Jeremy Schmahmann, MD, FAAN, FANA, FANPA

Neurologist
Harvard Medical School

Vikram Shakkottai, MD, PhD

Vikram Shakkottai, MD, PhD

Neurologist
University of Michigan Ataxia Center

Lori Shogren

Lori Shogren

Program and Services Director
National Ataxia Foundation

Joel Sutherland

Joel Sutherland

Development Director
National Ataxia Foundation

Emily Todd, MS, CDC

Emily Todd, MS, CDC

Certified Genetic Counselor
University of Colorado

Viveiros

Matthew and Jeannette Viveiros

Community Member

Stephanie Wilkins

Stephanie Wilkins

Ataxia Support Group Leader
National Ataxia Foundation

George Wilmot, MD, PhD

George Wilmot, MD, PhD

Neurologist
Emory University

Theresa Zesiewicz, MD

Theresa Zesiewicz, MD

Neurologist
University of South Florida

Huda Zoghbi, MD, PhD

Huda Zoghbi, MD, PhD

Neurologist
Jan and Dan Duncan Neurological Research Institute

Sponsors

Thanks to our partners below for their support of 2021 AAC! Stay tuned for announcement of additional partners.

Interested in sponsoring or exhibiting at our virtual event? Contact Joel Sutherland at joel@ataxia.org for more information. 

LEARN ABOUT SPONSORING AAC >>

FAQs

When is the next Annual Ataxia Conference?

The Annual Ataxia Conference is held annually. You can find information about upcoming and past events at www.ataxia.org/annual-ataxia-conference/.

I can’t afford to register. Will the content be available after the event?

Registration Scholarships are available to a limited number of eligible persons. If you are diagnosed with Ataxia and want to attend, but cannot pay the registration fee, please apply for a Registration Scholarship. Recordings of some conference content will be made available on our website and YouTube channel after the event.

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