*NEW* Ataxia treatment pipeline launched! It is a visual look at drug development progress. LEARN MORE!

National Ataxia Foundation


Month: June 2022

Kathryn Smith-Hanssen

Life as I knew it, irrevocably changed fifteen years ago. It wasn’t an immediate event, but a slow, unraveling of my ability to move about normally. The rare, inherited condition that my Norwegian grandmother called the “falling disease” chose me, and I lost the genetic lottery. Most of my adult life I had been athletic Read More…

Shawn Andrus

My name is Shawn Andrus, many call me either, husband, father, son, uncle, and one calls me Godfather. I was diagnosed officially with Ataxia in January of 2020 at 48 years of age. My journey began with a fall where I was told to monitor for signs of concussion. I had no idea this was Read More…


NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. Webinars are complimentary for NAF members. Join NAF to receive notices about upcoming Ataxia webinars.  Browse the topics below to view a past webinar. Check back at a later date for new webinars.  Recently Featured PrepRARE Webinars MERA Read More…

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