ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his wife and help raise awareness for everyone living with Ataxia. Along the way, he discovered something even bigger. “The views were spectacular, the encouragement from Read More…
Enhancing Community Through Professional Support For decades, NAF Support Groups have provided a welcoming place for people living with Ataxia, caregivers, family members, and loved ones to connect with others who understand their journey. Led by dedicated volunteer Support Group Leaders, these groups offer encouragement, shared experiences, and meaningful community. Read More…
Hello, I’m Abdulrahman – in the beginning I was shocked, but then I digested the news, my lifestyle and way of living really helped me in overcoming these hardships When Were You Diagnosed? Which Type (If Known)? October 2023 How Has Ataxia Impacted Your Life? It has been challenging and Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Pioneer SCA3 Translational Research Award (2024): Read More…
The National Ataxia Foundation (NAF) led a survey of people with Ataxia and their families in January 2025. The goal of the survey was to get feedback on NAF’s services, but also to learn more about the experience of living with Ataxia. In May 2026, NAF staff members published a scientific paper in the journal The Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Characterizing peripheral neuropathy onset and progression Read More…
Thank you to everyone who joined our State of NAF webinar. It was an opportunity to reflect on where we’ve been, where we’re headed, and how the voices of the Ataxia community continue to shape our path forward. During the webinar, we announced a transformative gift from an anonymous donor Read More…
23 Studies Funded Totaling $910k! We’re proud to support 23 research grants driving progress in Ataxia research. Explore the full list of funded studies below. A huge thank you to our scientific reviewers who volunteer their time and expertise to make sure that the best science to accelerate Ataxia treatment Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: The functional domains of a1ACT and Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Characterization of naturally occurring mGlu1 mutations Read More…
