*NEW* Ataxia treatment pipeline launched! It is a visual look at drug development progress. LEARN MORE!

National Ataxia Foundation

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NAF

NAF Announces First International Site for the CRC-SCA

We’re excited to announce the first international site for the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) natural history study! NAF is proud to partner with Ataxia Canada and the Centre hospitalier de l’Université de Montréal in Montreal, Québec to provide the Ataxia community with a new Read More…

National Ataxia Foundation

NAF Recognizes the Gordon and Marilyn Macklin Foundation

In 2018, the Gordon and Marilyn Macklin Foundation and NAF partnered on a critical project for the Ataxia community: A relaunch of the Clinical Research Consortium for the Study of Cerebellar Ataxias, better known as the CRC-SCA Natural History Study. The CRC-SCA is an ongoing clinical study that aims to Read More…

Webinars

NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. Webinars are complimentary for NAF members. Join NAF to receive notices about upcoming Ataxia webinars.  Browse the topics below to view a past webinar. Check back at a later date for new webinars.  Read More…

National Ataxia Foundation

2022 NAF Funded Research

We’re excited to announce that NAF will award more than $850,000 in Ataxia research grants this year! This year’s funded projects will support research on 8+ genetic forms of Ataxia, from the most common to some of the rarest, as well as address shared disease pathways that could provide insights Read More…

NAF Hosts First Ataxia Clinical Training

We are thrilled to inform you of an NAF-sponsored annual program called Ataxia Clinical Training (ACT). ACT has been developed for clinician-scientists committed to improving the lives of patients and caregivers affected with Ataxia. There is a shortage of well-trained specialists who are knowledgeable about clinical and scientific aspects of Read More…

NAF Welcomes Four New Board Members

As a non-profit organization, NAF’s strategic vision is lead by our Board of Directors. They are a dynamic group of individuals that volunteer their time and resources to guide NAF towards its mission of accelerating the development of treatments and a cure while working to improve the lives of those Read More…

Protect Yourself from Scams on Social Media

The NAF Facebook Group was established as a support group and social network for people with Ataxia, including their families, friends, caregivers, and anyone affected by Ataxia. With any social network, there is a risk of encountering scammers and spammers. We’d like to provide you with some information about how Read More…

NAF is Accepting Applications for the Diverse Scientists Grant

NAF is now accepting applications for the Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Applications must be submitted via proposalCentral by March 28, 2022. This award provides partial support for study and research and may be used to support pre-doctoral students who are pursuing dissertation research with an Ataxia-relevant theme. This is a two-year $50,000 Read More…

NAF is Piloting a Free Genetic Counseling and Testing Initiative

NAF is excited to announce that we are beginning a feasibility study of a program to remove barriers to genetic counseling and testing. Eligible participants will receive genetic counseling at no-cost to them. After counseling, if the participant and genetic counselor determine that testing is the right decision, genetic testing Read More…

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