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Celebrating a Milestone in Ataxia Research and Community Collaboration

Ataxia is complex; the diverse symptoms it presents makes every individual’s experience uniquely challenging. As a person ages, determining whether changes are caused by Ataxia or unrelated causes can be difficult, especially when symptoms impact the way a person thinks and feels.  It is important to understand Ataxia’s impact beyond Read More…

The Ruehl Family

When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She chalked it up to him being off-balance and in a hurry—after all, he was an athletic, teenage boy and he was always running off to Read More…

Screenshot of the ClinicalTrials.Gov search fields.

Finding Clinical Trial Information Using ClinicalTrials.Gov

Many people with Ataxia are interested in participating in clinical research, but are not sure where to start. It can be tricky to know where to start looking for information. Our Participate in Ataxia Research webpage is a good place to start.  However, we often receive questions about how to Read More…

Carol Paige

My unwanted guest arrived when I was conceived. He rode in on my DNA and set up residence in the part of my brain called the cerebellum. This is located in the lower back of the brain and controls the major muscles and coordination.  He lived very quietly, in fact Read More…

NAF Announces 2024 Treasure Coast Walk N’ Roll

Walk N’ Roll events bring together individuals, families, and communities to spread awareness and support NAF’s mission of accelerating treatments and improving the lives of those living with Ataxia. The first 50 participants with a donation of $50 or more will get a free t-shirt! Minneapolis, MN (January 24, 2024) – Read More…

NAF Announces Core Values and Org Structure Changes

Our vision is clear: a world without Ataxia. Our mission guides the way that we pursue that vision: by accelerating the development of treatments and a cure while working to improve the lives of those living with Ataxia. As NAF grows, we wanted to identify the values that embody our Read More…

Top 5 Holiday Gift Ideas for Individuals with Ataxia

Guest Author: Day Undefined Welcome to Day Undefined’s Holiday Gift Guide for the National Ataxia Foundation – taking a fun twist on some of our favorite products. We hope it might spark ideas for useful, thoughtful, and accessible gifts for yourself or a loved one. Of course, while our team Read More…

NAF is Hiring a Clinical Research Coordinator

NAF is hiring a full time Clinical Research Coordinator. This person will be responsible for supporting the Clinical Operations Branch of the Research Department. This position primarily focuses on coordinating the NAF-sponsored Natural History Study titled Clinical Research Consortium for the Study of Cerebellar Ataxias (CRC-SCA). They will independently manage Read More…

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