NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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We’re excited to share that our CEO, Andrew Rosen, was recently featured on the Mission Matters podcast! In the episode, titled “Raising Awareness and Advancing Research,” Andrew discusses NAF’s commitment to accelerating treatment development, supporting families affected by Ataxia, and building a world without this devastating disease. The conversation touches Read More…
Hello my name is Sly. I’m 33 years old. Started to show symptoms at age 21, diagnosed at age 25. Fun fact: before I got diagnosed is that I hiked half Dome in Yosemite. It took me and my family about fifteen hours. When I moved in an apartment with Read More…
Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference. This series features real advice from real people in the Ataxia community—simple things they’ve done to Read More…
Disability Services and Financial Planning Information and resources on disability services and financial planning for people impacted by Ataxia. What is Disability? What are Disability Services? Disability is broadly defined as any condition that makes it more difficult for a person to do certain activities or interact with the world Read More…
Artisans for Ataxia A virtual art auction that showcases original, handcrafted works to raise funds and awareness for Ataxia. DONATE ARTWORK HOW THE AUCTION WORKS CONTACT US Artisans for Ataxia is a vibrant online auction that brings together artists and supporters to fuel progress in the fight against Ataxia. This Read More…
Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, it’s a different kind of math entirely. The logistics don’t just ask for planning—they demand precision. And while well-meaning friends may offer up Pinterest checklists Read More…
Guest Author: Ellie Martin Summer is here! I’ve put together a list of products that might be particularly useful during this time of year. Many of these products have been suggested and reviewed by Day Undefined, a website of everyday products for accessible living. All of the products that they Read More…
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going through a really hard time due to his current symptoms. Growing up my dad was a very active man who played baseball for over 3 Read More…
Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new webinar and live demonstration series from NAF featuring Chef Troy Stewart, a professional chef living with Gluten Ataxia. These fun, engaging sessions are designed to Read More…
I grew up in a small & rural town of about 3,500 people in central Minnesota. I was raised in a blue-collar middle class home, with both loving parents and two older brothers. I was an average athlete in high school (for a small town) playing football and baseball, and Read More…
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