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Our youngest son Connor was born on a beautiful fall morning. He was the youngest of our three children, so he had a sister who was 7 and a brother who was 3. He was and has always been so loved and adored. When he was six months old, I, Read More…
LSVT stands for Lee Silverman Voice Therapy. It is a speech therapy program that is well researched and widely used in speech pathology for treating dysarthria (slurred or unclear speech) in Parkinson Disease. Individuals with Parkinson Disease often have a quiet voice and slurred speech, and they often do not Read More…
Guest Author: Jeff Gallagher, Patient Advocate and Caregiver My wife, Debbie, inherited ataxia from her mother and became symptomatic nearly 35 years ago (when she was 32). Through genetic testing 4 years ago we found the specific type – SCA34. She retired from a career in Hospice Nursing relatively early Read More…
Hello, I wanted to share with you the disease that has been in my family (my dad) : Spinocerebellar Ataxia Type 3, or for short SCA3. This illness has more than 35 different types, with type 3 being the most common. It affects the cerebellum, affects walking, speech, movement coordination, Read More…
Support Cells Under Stress: A New Perspective on Spinocerebellar Ataxia Type 7 Written by Siddhesh SabnisEdited by Katie Deschamps, PhD Although scientists have known the genetic cause of spinocerebellar ataxia type 7 (SCA) for many years, they still don’t fully understand why there are no treatments that can slow down Read More…
It all started with a change in my speech. I honestly thought I may have suffered a stroke whilst sleeping or something because it suddenly became difficult to articulate certain words and it was quite slurred. This was during my mid – 20s and up to that point I was Read More…
Written by Jacen Emerson Edited by Pragya Goel, PhD Regular stationary bike training improves ataxia symptoms within months according to a clinical trial. Home cardio may outperform traditional balance training A new clinical trial has identified daily aerobic exercise as an effective home treatment for reducing ataxia symptoms. With Read More…
I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability to do everyday tasks like washing my car or cleaning the gutters, I cannot print or write anymore, sometimes my ability to sleep is compromises, Read More…
Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager I loved working with children. I began teaching early childhood education at 18. I gradually moved to advocating for children with special health care needs Read More…
What is a Randomized Controlled Trial (RCT)? Before a new drug or therapy can reach patients, researchers and regulatory agencies need evidence that it is safe and effective. One of the most reliable ways to gather this evidence is through a randomized controlled trial (RCT). A key challenge in medical Read More…
