NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Welcome to the ATAXIA RESOURCES and DISCUSSION GROUP page. This is a collection of information and resources that might be helpful to you on your Ataxia journey.
“We Are All In This Together”
Check out our welcome video and contact our Support Group Leader Susan Stiles at susanataxia@gmail.com if you have any questions.
To empower people with Ataxia with knowledge and resources to accomplish anything and live fulfilling lives.
This is a support group to talk about Ataxia, discuss resources and share stories with one another in a social gathering. Our motto is, “We are all in this together.” If you’re interested in joining a zoom AR&DG support group, please send an email to susanataxia@gmail.com for an invite.
We meet every Monday via zoom either at 1 pm (EST) or 3 pm (EST). AR&DG also has a PRIVATE FACEBOOK GROUP – in which you will be asked a couple of questions for membership only members can see who is in the group and what they post.
Join our Facebook Group: Ataxia Resources and Discussion Group
Please reach out with any questions or for information about how to join an upcoming meeting.
Support Group Leader
Susan Stiles
Email: susanataxia@gmail.com
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
