NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Care Partners have an essential role in the lives of their loved ones with Ataxia. Whether you are a parent, spouse, or other care partner, this series is for you! It will provide information on a variety of caregiving topics, such as daily care, care planning, self-care, and other specialized subjects. The goal of the Care Partners series is to provide guidance, strategies, and resources for those who provide care.
Select a session below to register.
“Thank you NAF for the Zoom presentation last week about caregiving, on giving and receiving. My husband and I participated in the Zoom and thought it informative, enlightening, and very worthwhile. The presenters were open and engaging. And we found them honest and open to talking about matters with ataxians sometimes not discussed. All the best!”
-Chris and Mick C (Regarding Support for Spouses and Partners Webinar)
Support for Parents of Adult Children with Ataxia
Support for Spouses and Partners
Navigating the challenges of parenting children with Ataxia can often feel isolating, but you’re not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These sessions will be interactive discussions offered in a welcoming and informal setting, moderated by Dr. Barañano.
Upcoming sessions can be found at the top of this page.
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Join Zoom Meeting
https://us02web.zoom.us/j/89926537194?pwd=LeC0bBFlpDRezaqfgfb7jb05sDyYzE.1
Meeting ID: 899 2653 7194
Passcode: 280268
Pediatric OT
Utilizing Social Workers in Schools
Neuropsychology
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
