NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
The Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) continues to collect longitudinal data and biospecimens for research participants who have a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8, 10, 27B, or RFC1 Ataxia/CANVAS. The following data is available to the Academic Research Community by following the process below.
1. Review the policy and follow the guidelines.
2. Fill out Appendix 1 from the guidelines and attach your scientific proposal.
3. Send Appendix 1 and your proposal to Dr. Sheng-Han Kuo.
Please follow the instructions available here and concurrently contact Dr. Sheng-Han Kuo.
