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National Ataxia Foundation

Accelerate!

Academic Research Community

Resources Available

The Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) continues to collect longitudinal data and biospecimens for research participants who have a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8 or 10.  The following data is available to the Academic Research Community by following the process below. 

Longitudinal Data

Clinical Outcome Measures

  • Medical History
  • Concomitant Medications
  • Therapy Review
  • Physical Examination and Neurological Exam
  • Physician Global Impression
  • SARA score
  • CCAS
  • PHQ-9
  • 9-hole Peg Test
  • Timed 25-Foot Walk
  • EQ-5D
  • Functional Stage Estimation
  • FAADL
  • FSS
  • Falls Questionnaire

How to Request CRC-SCA Data

1. Review the policy and follow the guidelines. 

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2. Fill out Appendix 1 from the guidelines and attach your scientific proposal. 

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3. Send Appendix 1 and your proposal to Dr. Sheng-Han Kuo.

How to request CRC-SCA Biosamples

Please follow the instructions available here and concurrently contact Dr. Sheng-Han Kuo.

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