NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
PACIFIC TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Our guest this month is Jennifer Keller, PT/MS, Asst Prof of Physical Medicine & Rehab at the John’s Hopkins Medicine International Center for Movement Studies/Kennedy Krieger Institute. She will be talking about balance and walking steadiness strategies/exercises. She is open to discussing anything we would like to talk about! Don’t miss this meeting, it’s going to be great! Hope to see you there…
https://us06web.zoom.us/j/4170430276
Contact Information
Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net
or Don Fey at Email: feydw@aol.com
or Daniel Gavern at Email: dkgavern@gmail.com
Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
