NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Location: Orange County Library – Southeast Branch – Meeting Room 2
Zoom Link: https://us02web.zoom.us/j/84416673701?pwd=XyXL2umuBqkR0oU267B7pzaCpEapjV.1
Meeting ID: 844 1667 3701
Passcode: 876827
The space is limited, please R.S.V.P. to lisacoleataxia@gmail.com
We must know how many people are coming, so we can set up the right number of tables and chairs. Thank you!
Friends and family are welcome.
Also, we need volunteers to come at 1 pm (to help set up) and stay extra to help until we are finished cleaning up. Thank you!
We will have a few guest speakers virtually!
Contact Information
For more information contact:
Lisa Cole (Treasure Coast Support Group Leader) at 772-370-3041 | lisacoleataxia@gmail.com or join their Facebook Group!
Darlene Harris at msdee004@yahoo.com or 813-431-2859 OR Janet Colon at colonjanet@yahoo.com (Tampa Bay Support Group leaders) or join their Facebook Group!
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
