NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME
Meetings are at 3pm
Zoom meeting ID: 862 0682 9129
Passcode: HFA2020
For more information contact Amy DeLeon at amy@hopeforataxia.org.