NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Location: Zoom
https://us06web.zoom.us/j/7647744197?pwd=LKJZxmfQYLHMkREiIbKBzIHdeFSpm3.1&omn=89563619942
Meeting ID: 764 774 4197
Passcode: yw2Eqd
Contact Information
For more information or to be added to the mailing list for this group please contact:
Bill Pierce: biliapp35@gmail.com
Facebook: https://www.facebook.com/groups/8840773286030935/
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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