Skip to content

Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW

Loading Events

United Against Ataxia Hill Day

September 17

Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 17th! Advocates will have the opportunity to attend virtual meetings with members of congress and their staffers to tell their stories and relay the importance of supporting NAF’s legislative initiatives.

  • July 28th – Registration Opens
    Sign up to participate in Hill Day! Link to register will be available soon. Register by August 20th.
  • August 25th – Deadline to Complete Advocate Training
    Watch the training videos and complete a survey to indicate successful completion by August 25th. Links to the training videos and survey will be sent to you when you register.

Important! Your Congressional meetings will not be scheduled until you complete the training video survey.

If you encounter any problems, or if you have any questions, contact Lori Shogren at lori@ataxia.org or Emma Potter at emma.potter@curefa.org.

Visit www.ataxia.org/advocacy for more information.

Share This Event

  • This event has passed.

Details

  • Date: September 17
  • Cost: FREE
  • Event Category:

Venue

  • Virtual
Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.