Hill Day - National Ataxia Foundation

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United Against Ataxia Hill Day

Raising our voices for Ataxia on Capitol Hill.

ADVOCACY

LEGISLATIVE ISSUES

UPCOMING EVENTS

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Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policy issues during our annual United Against Ataxia Hill Day! Advocates will have the opportunity to attend virtual meeting with members of Congress and their staffers to tell their stories and relay the importance of supporting NAF’s legislative initiatives.

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2025 United Against Ataxia Hill Day

Thank you to everyone who participated in Hill Day this year! We are grateful to have such a passionate community of people who got involved in advocating for ataxia with us. The event was a huge success, with 169 advocates participating in 99 meetings with Senate and House of Representative offices from 38 states. We advocated for research funding, the continued inclusion of hereditary ataxia in the CDMRP, and legislation to incentivize rare disease treatment development and improve patient access to care. There was a lot to cover in these meetings, so thank you to our advocates for learning about all of these complex topics. This event would not have been possible without your hard work.

Visit www.ataxia.org/advocacy/hillday to learn more and to get ready for Hill Day 2026!

Training Video Playlist

Our United Against Ataxia Hill Day training videos break down each topic into short, easy-to-follow segments so you can feel confident and prepared for your meetings on Capitol Hill.

Hear from Our Advocates

“Thank you for organizing this! It was encouraging to see the engagement of the staffers!”

“I just wanted to extend my gratitude to NAF for letting me be a part of Hill Day! It means so much for the disabled to have advocacy, but when we can advocate for ourselves, it is so meaningful!”