Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policy issues during our annual United Against Ataxia Hill Day! Advocates will have the opportunity to attend virtual meeting with members of Congress and their staffers to tell their stories and relay the importance of supporting NAF’s legislative initiatives.

2026 Legislative Asks:

• Continued inclusion of hereditary ataxia in the Congressionally Directed Medical Research Program (CDMRP)
• Robust funding for the NIH, FDA, CDMRP, and the FDA’s Rare Disease Innovation Hub (RDIH)
• Support for the Scientific EXPERT Act (H.R. 1532/S. 822)
• Withdrawal of the OMB’s proposed “Regulation for Federal Financial Assistance”

Registration opens August 10th and closes August 31st. Register Here!

Complete required training by August 31st. Participants will be sent training information, including training videos and a training completion form, when they register.