Advocacy

Name: Greater Atlanta Support Group Mardi Gras Party
Start: 2026-02-28T14:00:00-05:00
End: 2026-02-28T16:00:00-05:00

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1 event 23 1 event, 23 2026-02-23 FDA Rare Disease Day 2026 FDA Rare Disease Day 2026 February 23 FDA Rare Disease Day 2026 Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. This is a virtual event to connect patients with the FDA. There will be panels discussing topics related to patient-focused work being done at FDA and opportunities	1 event 24 1 event, 24 2026-02-24 Rare Disease Week on Capitol Hill Rare Disease Week on Capitol Hill February 24 - February 26 Rare Disease Week on Capitol Hill The Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand the power of advocacy and the impact we can make when we raise our voices together. Learn more: https://everylifefoundation.org/rare-advocates/rare-disease-week/	1 event 25 1 event, 25 2026-02-24 Rare Disease Week on Capitol Hill	1 event 26 1 event, 26 2026-02-24 Rare Disease Week on Capitol Hill	1 event 27 1 event, 27 9:00 am - 5:00 pm Rare Disease Day at NIH February 27 @ 9:00 am - 5:00 pm Rare Disease Day at NIH Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Day at NIH will be held at NIH Main Campus (Natcher Conference Center) on Friday, Feb. 27, 2026, from 9 a.m. to 5 p.m. EST.	1 event 28 1 event, 28 2026-02-28 Rare Disease Day Rare Disease Day February 28 Rare Disease Day Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Day is an opportunity for the global rare disease community to come together to raise awareness of our shared experiences and to highlight community stories.