3 events found.
Advocacy
NORD Rare Diseases Summit
Rare Diseases & Orphan Products Breakthrough Summit: From Voices to Breakthroughs Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough
Rare Disease Week on Capitol Hill
Capitol Hill Washington, DC, DC, United StatesThe Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand
Undiagnosed Rare Disease Day
VirtualUndiagnosed Rare Disease Day is celebrated on several different days around the world but every day is undiagnosed for the families living in the world of the unknown. Rare &
FREE
